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Development and Assessment of The Polycystic Liver Disease Questionnaire (PLD-Q).

Rochester, MN
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Development and Assessment of The Polycystic Liver Disease Questionnaire (PLD-Q).
- Location:
  Observational
  Describes the nature of a clinical study. Types include:
  
  Observational study — observes people and measures outcomes without affecting results.
  
  Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
  
  Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
About this study

This Pilot study will enable development & assessment of a Polycystic Liver Disease-specific patient reported outcomes questionnaire (PLD-Q). Polycystic liver disease (PLD) is characterized by the formation of numerous cysts in the liver, and can lead to severe symptomatic hepatomegaly. It is common in patients with autosomal dominant polycystic liver disease (ADPLD) and autosomal dominant polycystic kidney disease (ADPKD).

Participating Mayo Clinic locations

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Rochester, Minn.

Open for enrollment
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Site IRB:
Rochester, Minnesota: 14-003832

NCT ID:
NCT02173080

Sponsor Protocol Number:
14-003832

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