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Kicking Behavior in Infants with Spina Bifida following in Utero and Postnatal Surgery
Rochester, MN
The aim of this study is to describe how kicking frequency and complexity differs over developmental time between typically developing infants, infants with SB who have had prenatal repair of their spinal lesion, and infants with SB who have had postnatal repair.
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Transcutaneous Spinal Cord Stimulation Enabling Reflex Motor Evoked Responses With Spina Bifida
Rochester, MN
The purpose of this study is to characterize the motor function deficits specific to muscle weakness, intra and interlimb coordination, and the presence, or absence of spasticity.
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A Registry to Follow Long-Term Outcomes for Mother and Child Pairs After Fetal Surgery for Spina Bifida
Rochester, MN
The purpose of this study is to form a registry of data on the long term physical and mental health outcomes of the mother and child following fetal surgical repair for spina bifida.
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Quality of Lifeof Children and Youth With Spina Bifida and Their Caregivers
Rochester, MN
The purpose of this study is to collate information from pediatric spina bifida patients and their parents or guardians in regard to which clinical services and therapies would be most relevant and helpful to this patient population.
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A Study To Evaluate Minimally Invasive Fetoscopic Regenerative Repair Of Spina Bifida
Rochester, MN
The purpose of this study is to evaluate a new, minimally-invasive technique (fetoscopic repair) for repair of spina bifida (MMC) during the second trimester of pregnancy. Researchers are trying to determine if this less invasive surgical approach will have less risk to the mother and, at the same time, adequate closure of the fetal spina bifida defect.