NIDILRR and the national TBI database

The TBIMS National Database is a prospective, multicenter database and the largest longitudinal TBI database in the world, funded by National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). It includes data on pre-injury, injury, acute care, rehabilitation, and outcomes at one, two and five years post-injury and every five years with information up to 25 years post-injury so far. The TBIMS National Database has been used to inform research, treatment and policy to benefit individuals with TBI and their families.

NIDILRR funds the Traumatic Brain Injury Model Systems National Data and Statistical Center, located at Craig Hospital in Englewood, Colorado, to store and manage the TBIMS National Database.

The overall focus of the National Data and Statistical Center is to:

  • Serve as a central resource for researchers and data collectors
  • Advance medical rehabilitation by increasing the rigor and efficiency of scientific efforts
  • Assess the experience of individuals with TBI over the very long term
  • Provide technical assistance, training and methodological consultation to all 16 centers, where research is conducted for TBI evidence-based rehabilitation interventions