Data Sharing and Resources

Data sharing

The Mayo Clinic Study of Aging and the Alzheimer's Disease Research Center yield a rich record of clinical, biomarker and neuropathological data. These data are available to qualified academic and industry researchers to maximize the value of these resources.

Data include:

• Cognitive and brain-aging trajectories
• Characterization of and outcomes for mild cognitive impairment and dementia
• Vascular, psychiatric and inflammatory predictors of cognitive impairment
• In vivo brain pathology

Data dictionary

The Mayo Clinic Study of Aging Data Dictionary provides an overview of the data collected in the study and the data collection schedule. Mayo Clinic Study of Aging data include:

• Information provided by participants
• Neurological and cognitive examination results
• Brain imaging data and diagnoses

Contact the study for additional information about these data.

Request data

Qualified researchers interested in these data sharing opportunities can submit a request to the Mayo Clinic Study of Aging's executive committee. Each request is reviewed to determine eligibility. To request data or specimens:

• Download the data sharing agreement (Word document).
• Submit a request to access clinical, biomarker and neuropathological data, biofluids or specimens. If this is your first request, click on the "Sign In" icon in the upper right corner to create an account.
• Contact the data sharing coordinator at mcsaadrcdatasharing@mayo.edu with questions.

Mayo Normative Studies (MNS) Auditory Verbal Learning Test (AVLT) Scoring Resource

Normative data help determine whether an individual's performance on a cognitive test is within the expected range when considering factors such as age, education and sex.

Mayo Clinic has a long history of providing normative data on older adults through the Mayo Older Americans Normative Studies (MOANS) and the Mayo Older African American Normative Studies (MOAANS). Mayo Clinic researchers continue this tradition by providing new normative data derived from the Mayo Clinic Study of Aging, now referred to as the MNS, including AVLT data.

The Mayo Clinic Study of Aging offers researchers access to normative data available for individuals age 30 and older for the AVLT and is working to provide additional normative data. These normative data use updated methods for deriving norms and are based on a larger sample than that used in the MOANS.

After filling out the request form and acknowledging the disclaimer, clinicians and researchers are welcome to download a Microsoft Excel file that facilitates calculation of normative scores.

This resource sharing opportunity is available to clinicians and researchers free of charge. Normative data are used with permission of Mayo Foundation for Medical Education and Research.

Full methodological details and information about the normative sample are available in:

Stricker NH, Christianson TJ, Lundt ES, Alden EC, Machulda MM, Fields JA, Kremers WK, Jack CR Jr, Knopman DS, Mielke MM, Petersen RC. Mayo Normative Studies: Regression-based normative data for the auditory verbal learning test for ages 30-91 years and the importance of adjusting for sex. Journal of the International Neuropsychological Society. 2020; doi:10.1017/S1355617720000752.