A Study Of Epidermolysis Bullosa Clinical Characterization And Outcomes
Rochester, MN
The aim of the Epidermolysis Bullosa Clinical Characterization and Outcomes Database (CCOD) is to collaboratively advance knowledge about epidermolysis bullosa (EB) by capturing and cataloging primary clinical data from patients with EB from multiple EB centers in North America. As EB is a rare disease, coordination and collaboration between multiple centers of excellence will expedite our understanding of disease manifestations, course, and complications, with the aim of improving future care, expanding clinical and translational research, and finding an eventual cure for individuals with EB.