Growth, Development and Quality of Life in Pediatric Patients after Cone Reconstruction for Ebstein Anomaly
Rochester, MN
In this study, we seek to perform a survey of patients who had surgery performed at Mayo Clinic for Ebstein's anomaly, asking for growth charts when available, and giving patients a limited developmental screening questionnaire and quality of life questionnaire. We seek to try to determine the specific age at which repair of Ebstein's anomaly may result in improved long-term outcomes beyond the operating room.