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A Study Of FAIR-CARE In Mayo Clinic’s Primary Care Network

Overview

About this study

The purpose of this study is to explore how genomic tools and family history can be integrated into primary care workflows to improve early detection of inherited cardiac conditions and prevent sudden cardiac death (SCD).

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Adults aged 18 years or older

  • Ability to speak and understand English

  • For clinicians: currently practicing as a primary care clinician, genetic counselor, or cardiologist at Mayo Clinic

  • For patient representatives: affected patients, known genetic carriers, or family members/caregivers of individuals with LQTS, HCM, or ACM

Exclusion Criteria:

  • Individuals under 18 years of age.

  • Non-English speakers.

  • Medical students or trainees.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 04/20/2026. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Elisa Houwink, M.D., Ph.D.

Contact us for the latest status

More information

Publications

Publications are currently not available

More about research at Mayo Clinic

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CLS-20605411

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