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Pituitary tumor registry

Overview

About this study

The purpose of this data registry involves the collection of standard of care clinical treatment regimens, diagnostic information and surgical outcomes which may include human specimens and associated genomewide expression data.  

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Age greater than or equal to 15 years.
  • Neurological disease or disorder diagnosis.
  • Internet access and/or ability to complete paper forms.
  • Willing and able to provide informed consent in compliance with the regulatory requirements.

Exclusion Criteria:

  • Due to the complexity of state and federal requirements governing the participation of pregnant women and prisoners in research, neither shall be approached for participation.
  • Subjects that lack the ability or willingness for longitudinal followup.
  • Subjects that do not meet the above inclusion criteria.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 10/4/23. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Jamie VanGompel, M.D.

Open for enrollment

Contact information:

Kiersten Sydnor

(507) 255-9846

Sydnor.Kiersten@mayo.edu

More information

Publications

Publications are currently not available

More about research at Mayo Clinic

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CLS-20582511

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