A Study to Create an Hereditary Hemorrhagic Telangiectasia and Gastric Anal Vascular Ecstasia Biorepository


About this study

The purpose of this study is to develop a repository of blood and tissue from patients with epistaxis and GI bleeding secondary to the conditions described above (HHT, GAVE, SBA and OGIB).

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Ages 18 years of age or older.
  • Patients with bleeding secondary to HHT, GAVE, SBA and OGIB.
  • Age and sex matched patients without bleeding (controls).
  • Patients willing to provide written informed consent.

Exclusion Criteria:

  • Unwillingness/unable to provide informed consent.



Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Vivek Iyer, M.D., M.P.H.

Closed-enrolling by invitation

What is this? (?)
Not open to everyone who meets the eligibility criteria, but only those invited to participate by the study team.

Contact information:

Sue Ann Donlinger

(507) 284-9259


More information


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