Bronchiectasis Research Registry

Overview

About this study

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) bronchiectasis patients from major clinical and research institutions. The goal of the Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of non-CF bronchiectasis, a progressive, chronic disease of the lungs which afflicts thousands of patients. The Registry is also to be used to provide better insight into the diagnosis, pathophysiology etiologies, and management approaches of the different types of bronchiectasis.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Over the age of 18
  • non-CF Bronchiectasis
  • Nontuberculosis Mycobacteria (NTM)

Exclusion Criteria:

  • Under the age of 18
  • CF Bronchiectasis

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Timothy Aksamit, M.D.

Open for enrollment

Contact information:

Brandon Clapp

(507) 284-2122

Clapp.Brandon@mayo.edu

Jacksonville, Fla.

Mayo Clinic principal investigator

Margaret Johnson, M.D.

Open for enrollment

Contact information:

Robert Crews B.S.

Crews.Robert@mayo.edu

More information

Publications

Publications are currently not available
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CLS-20493099

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