Assessment of Uncertainty and Its Relationship to Important Transplant Outcomes

Overview

About this study

The purpose of this study is to measure uncertainty using the Mishel Uncertainty in Illness (MUIS) questionnaire (every 12 months) until 3 months posttransplant to explore the relationship of uncertainty and uncertainty subcategories (ambiguity, unpredictability prognosis, unpredictability symptoms, complexity) to important posttransplant outcomes (well-being, length of stay, and mortality).

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Aged 18 and older
  • Consenting to research
  • Listed or deferred for lung or heart transplantation at Mayo Clinic (Rochester, Jacksonville, and Arizona campuses), Cleveland Clinic, or the University of Texas Health Science Center in San Antonio.

Exclusion Criteria:

  • International patients
  • Require an interpreter
  • Ineligible for transplant
  • Pregnant

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Cassie Kennedy, M.D.

Closed for enrollment

More information

Publications

Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

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CLS-20492743

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