A Study of Identification of Barriers to Care in Patients with Progressive Multiple Sclerosis


About this study

The purpose of this study is to gain an understanding of the progressive multiple sclerosis (MS) experience and the meaning patients bring to the experience. By learning about the specific care gaps, barriers, and overall scope of burden, we hope to assess how telemedicine may be effectively used to improve the patient experience and management of progressive MS. 

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Patients with progressive multiple sclerosis.
  • Patients with an Expanded Disability Status Scale (EDSS) score of ≥ 6
  • Patients who are not taking disease modifying therapies

Exclusion Criteria:

  • Patients cognitively unable to provide informed consent for the study
  • Patients physically unable to participate in a one hour interview
  • Patients who have insufficient English to participate in a one hour interview

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

William Tobin, M.B., B.Ch., B.A.O., Ph.D.

Closed for enrollment

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