A Study to Collect Data Elements Related to Pediatric Epilepsy Surgery


About this study

The primary objective of this study is to create common data elements collected at all centers participating in this collaborative allowing for direct data comparison amongst participating centers. Secondary objectives will compare how Pediatric Epilepsy Centers evaluate surgery candidates in order to inform future studies to compare and potentially standardize the process.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Please contact the study team to discuss whether or not you are eligible to participate in a study.

Inclusion Criteria:

  • Patients must meet all of the following criteria to be included in the study:
    • Children ages 0-18 years at the time of phase I evaluation
    • Referral to Epilepsy Monitoring Unit for presurgical evaluation (phase I) for treatment of epilepsy and/or
    • Patients presented at a multidisciplinary conference of providers for consideration of epilepsy surgery and/or
    • Patients undergoing a surgical procedure for treatment of epilepsy

Exclusion Criteria: 

  • Patients who meet any of the following exclusion criteria will not be included in the study:
    • Patients that are admitted for a phase I evaluation but without available data (i.e. data was lost or is not attainable. For patients admitted for phase I and soon after deemed not surgical candidates, data will still be collected)

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Lily Wong-Kisiel, M.D.

Open for enrollment

Contact information:

Spoorthi Jagadish

More information


Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available


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