Cystic Kidney and Liver Disease Biobank


About this study


This research study is being done to create a collection of biospecimens (blood, urine, cyst fluid, bile, kidney or liver tissue, etc.) that can be used to facilitate the conduction of research on polycystic kidney and/or liver disease.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Patients undergoing surgery for polycystic kidney and liver disease or its complications or for a different renal or hepatic disease and wishing to participate in research studies of cystic liver and kidney disease.
  • Patients with polycystic kidney and/or liver disease, undergoing percutaneous cyst aspiration and wishing to participate in research studies of cystic liver and kidney disease.
  • Patients without polycystic kidney or liver disease undergoing nephrectomies or partial hepatectomies for other pathologies.
  • Deceased fetuses with evidence of polycystic kidney and/or liver disease undergoing autopsy
  • Deceased patients with polycystic kidney and/or liver disease undergoing autopsy.

Exclusion Criteria:

  • Individuals who do not comprehend English (i.e., participants must be able to read and sign a consent form without the assistance of an interpreter)
  • Individuals who are unable to sign consent (e.g., mentally challenged, those declared legally incompetent).
  • Individuals regarded as belonging to a vulnerable population (e.g.prisoners).
  • No age exclusion limit.
  • Individuals with HIV or hepatitis infection.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Peter Harris, Ph.D.

Open for enrollment

Contact information:

Tracy Baker

(507) 293-0534

More information


Publications are currently not available

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