Celiac Disease Registry


About this study

The purpose of this study is to develop a resource (bank) of biospecimens (blood, tissue, stool) and data collected from individuals with known or suspected gluten enteropathy, including celiac disease (CD) and dermatitis herpetiformis (DH).  Other enteropathies will also be included: collagenous sprue, idiopathic sprue, lymphocytic enterocolitis, idiopathic enteropathies, collagenous gastritis, Whipple’s disease, and other miscellaneous inflammatory disorders of the small intestine. This resource will be invaluable in answering the important questions outlined above and other future unanswered questions.   

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Age greater than 3 years
  • All subjects will be included even those with a suspected diagnosis of celiac disease and/or dermatitis herpetiformis.
  • Patients with
    • Collagenous sprue 
    • Idiopathic sprue 
    • Lymphocytic enterocolitis 
    • Idiopathic enteropathies 
    • Collagenous gastritis 
    • Whipple’s disease 
    • Other miscellaneous inflammatory disorders of the small intestine

Exclusion Criteria:

  • Vulnerable population

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Joseph Murray, M.D.

Open for enrollment

Contact information:

Carol Van Dyke CCRP

(507) 266-7842


More information


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