Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.See eligibility criteria
- Identify and recruit patients with HLHS and their first degree relatives and other patients with SRV.
- Potential research subjects with HLHS and other SRV will be identified from the Mayo Clinic echocardiographic and surgical databases.
- Patients and/or their parents/legal guardians will be contacted by telephone to inform them of our multi-component program investigating hypoplastic left heart syndrome and provided brief description of the programs purpose and structure.