Visual Outcomes in Patients with Neurofibromatosis Type 1

Overview

  • Study type

    Observational
  • Study IDs

  • Describes the nature of a clinical study. Types include:

    • Observational study — observes people and measures outcomes without affecting results.
    • Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
    • Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
  • Site IRB
    • Rochester, Minnesota: 14-004492
    Sponsor Protocol Number: 14-004492

About this study

The purpose of this study is to determine visual outcome in patients with neurofibromatosis type 1 (NF1).  The study will also correlate visual outcome with the history of optic glioma based on previous MRI imaging and compare visual outcomes in treated and untreated adult NF1 patients with a history of optic glioma.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.

See eligibility criteria

Inclusion Criteria:

  • Children and Adults diagnosed with neurofibromatosis type 1

Participating Mayo Clinic locations

Study statuses change often. Please contact us for help.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Dusica Babovic-Vuksanovic, M.D.

Contact us for the latest status

Contact information:

Kayla Ehlenfeldt

(507)284-9478

Ehlenfeldt.Kayla@mayo.edu

More information

Publications

Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

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CLS-20308922

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