Long Term Clinical Outcomes of Devic’s Disease

Overview

About this study

Aims, purpose, or objectives:

  1. To describe the clinical features along with treatment outcomes of a cohort of patients with a diagnosis of NMOSD after the latest revised criteria in 2015 by International Panel for Neuromyelitis Optica Diagnosis (IPND)
  2. To described the long term outcomes of a cohort of patients with a diagnosis of NMOSD
  3. To identify demographic, clinical and radiologic factors associated with long terms outcomes of NMOSD
  4. To determine if patients who are diagnosed with the revised 2015 IPND criteria, in particular those who do not satisfy previous criteria, are ultimately diagnosed with conditions other than NMOSD.
  5. To identify treatment effects and complications in this cohort of patients

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Please contact the study team to discuss whether or not you are eligible to participate in a study.

Subject population (children, adults, groups): 

Patients age of onset > 18 years old with a diagnosis or suspected diagnosis of neuromyelitis optica and/or neuromyelitis optica spectrum disorder

 

Inclusion Criteria:

Neuromyelitis Optica Spectrum disorder by the 2015 diagnostic criteria by the International Panel for Neuromyelitis Optica Diagnosis (IPND) with a duration of disease of five years or longer.

 

Exclusion Criteria:  none

 

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Brian Weinshenker, M.D.

Contact us for the latest status

Contact information:

Brian Weinshenker M.D.

(507) 284-2848

weinb@mayo.edu

Jacksonville, Fla.

Mayo Clinic principal investigator

Brian Weinshenker, M.D.

Contact us for the latest status

Contact information:

Iris Marin Collazo M.D.

(904)953-6869

MarinCollazo.Iris@mayo.edu

More information

Publications

Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

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CLS-20307295

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