A Registry of Stored Comprehensive Data on Syringomyelia and Chiari 1 Malformation to Study Pathophysiology, and Provide Outcome Measures


About this study

The purpose of this registry is to use a comprehensive database to study syringomyelia and chiari 1 malformation, the natural history, and clinical course following treatment in a large number of patients, and use advanced magnetic resonance imaging, CT and x-ray imaging to study the pathophysiology of the condition.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria

  • Has Syringomyelia and Chiari 1 Malformation

Exclusion Criteria 

  • Chooses not to participate in the study

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

David Daniels, M.D., Ph.D.

Open for enrollment

Contact information:

Yeoniee Kim



More information


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