Qualitative Examination of the Pretransplant Experience of Lay Care Providers


About this study

The objective of this study is to explore the experiences of patients and their caregivers during Mayo Clinic’s pretransplant care program. The study will use semi-structured interviews to describe pretransplant experiences from the perspectives of the primary caregivers of patients waitlisted for transplant, including a focus on uncertainty. The sutdy will also aim to determine if the Mishel Uncertainty of Illness theory is an appropriate construct for pretransplant caregivers' experience with uncertainty or if this needs to be expanded to reflect the specific experience of caregivers caring for patients on the transplant waitlist.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria

  • Individuals age 18 or older who are the primary caregiver of a patient that is listed or deferred status on the heart or lung transplant waiting list at the Mayo Clinic in Rochester MN and are able to provide consent or caregivers of patients who have received a transplant within the last 12 months.

Exclusion Criteria

  • Under the age of 18

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Cassie Kennedy, M.D.

Closed for enrollment

Contact information:

Amjad Murdos B.S.



More information


Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

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