A Study of the Clinical Phenotype of Patients Seen in Mayo's Genetic Heart Rhythm Clinic (Prospective)


About this study

The purpose of this study is to obtain full phenotypic information on all patients diagnosed with Congenital Long QT Syndrome and seen in the Mayo Clinic Long QT Clinic.   

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria

  • All  who have been seen in the Long QT Syndrome Clinic at the Mayo Clinic in Rochester, MN

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Michael Ackerman, M.D., Ph.D.

Closed-enrolling by invitation

What is this? (?)
Not open to everyone who meets the eligibility criteria, but only those invited to participate by the study team.

Contact information:

Kaylie Briske

(507) 266-0470


More information


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