Resources

Documents

The following PDFs provide information about the Tapestry DNA Sequencing Research Study, genetic information testing, familial hypercholesterolemia (FH), hereditary breast and ovarian cancer, and Lynch syndrome:

• Study brochure. The Tapestry DNA Sequencing Research Study brochure can be viewed, downloaded and printed.
• Example consent form. A copy of the Tapestry consent form can be viewed, downloaded and printed. This version is for information purposes only and cannot be used to consent to the study.
• FH information. Detailed patient education material from Mayo Clinic provides in-depth information about what FH is, what causes it, and how it's diagnosed and treated.
• Genomic medicine: Making an informed decision. A genomic medicine brochure from the Mayo Clinic Center for Individualized Medicine encourages you to prepare for a genomic medicine evaluation by reflecting on your goals and values as they relate to health, illness, disease and family relationships.
• Hereditary breast and ovarian cancer information. Detailed patient education material from Mayo Clinic provides in-depth information about what hereditary breast and ovarian cancer is, what causes it, and how it's diagnosed and treated.
• Lynch syndrome information. Detailed patient education material from Mayo Clinic provides in-depth information about what Lynch syndrome is, what causes it, and how it's diagnosed and treated.
• Understanding genetic information discrimination. Mayo Clinic provides patient education information about genetic information discrimination and the protection provided by the Genetic Information Nondiscrimination Act (GINA).

Related links

The following websites provide more information about the FH Foundation, the Genetic Information Nondiscrimination Act (GINA), Helix and Mayo Clinic:

• The FH Foundation
• GINA
• Helix
• Mayo Clinic