Publications

  1. Stuttgen Finn K, Pacyna JE, Tsou C, Samadder NJ, Sharp RR. Factors that Influence Intent to Share Genetic Information Related to Cancer Risk with Family Members. J Health Commun. 2021 Sep 2; 1-8 Epub 2021 Sept 02
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  2. Lee C, Elsekaily O, Kochan DC, Alhalabi L, Faizee F, Sharp R, Lindor NM, Kullo IJ. Penetrance and outcomes at 1-year following return of actionable variants identified by genome sequencing. Genet Med. 2021 Jul; 23 (7):1192-1201 Epub 2021 Apr 06
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  3. Horrow C, Pacyna JE, Lee MK, Sharp RR. Measuring Attitudes About Genomic Medicine: Validation of the Genomic Orientation Scale (GO Scale). Value Health. 2021 Jul; 24 (7):1030-1037 Epub 2021 Apr 02
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  4. Bean LJH, Scheuner MT, Murray MF, Biesecker LG, Green RC, Monaghan KG, Palomaki GE, Sharp RR, Trotter TL, Watson MS, Powell CM, ACMG Board of Directors. DNA-based screening and personal health: a points to consider statement for individuals and health-care providers from the American College of Medical Genetics and Genomics (ACMG). Genet Med. 2021 Jun; 23 (6):979-988 Epub 2021 Mar 31
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  5. Pacyna JE, Shaibi GQ, Lee A, Byrne JO, Cuellar I, Sutton EJ, Hernandez V, Lindor NM, Singh D, Kullo IJ, Sharp RR. Increasing access to individualized medicine: a matched-cohort study examining Latino participant experiences of genomic screening. Genet Med. 2021 May; 23 (5):934-941 Epub 2021 Jan 26
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  6. Beck AT, Sutton EJ, Chow CPY, Curtis SH, Kullo IJ, Sharp RR. "Who Doesn't Like Receiving Good News?" Perspectives of Individuals Who Received Genomic Screening Results by Mail. J Pers Med. 2021 Apr 21; 11 (5)
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  7. Finn KS, Pacyna J, Azevedo Tsou C, Jewel Samadder N, Sharp R. Patient-reported anticipated barriers and benefits to sharing cancer genetic risk information with family members. Eur J Hum Genet. 2021 Apr 19 [Epub ahead of print]
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  8. Meyer MN, Gelinas L, Bierer BE, Hull SC, Joffe S, Magnus D, Mohapatra S, Sharp RR, Spector-Bagdady K, Sugarman J, Wilfond BS, Lynch HF. An ethics framework for consolidating and prioritizing COVID-19 clinical trials. Clin Trials. 2021 Apr; 18 (2):226-233 Epub 2021 Feb 02
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  9. Teigen LN, Sharp RR, Hirsch JR, Campbell E, Timm PC, Sandness DJ, Feemster JC, Gossard TR, Faber SM, Steele TA, Rivera S, Junna MR, Lipford MC, Tippmann-Peikert M, Kotagal S, Ju YE, Howell M, Schenck CH, Videnovic A, Jennum P, Hogl B, Stefani A, Arnulf I, Heidbreder A, Lewis S, McCarter SJ, Boeve BF, Silber MH, St Louis EK. Specialist approaches to prognostic counseling in isolated REM sleep behavior disorder. Sleep Med. 2021 Mar; 79:107-112 Epub 2020 Dec 24
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  10. Cheema AW, Sutton EJ, Beck AT, Cuellar I, Moreno Garzon GG, Hernandez V, Lindor NM, Shaibi GQ, Kullo IJ, Sharp RR. Experiences of Latino Participants Receiving Neutral Genomic Screening Results: A Qualitative Study. Public Health Genomics. 2021 Feb 16; 24 (1-2):44-53 [Epub ahead of print]
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  11. Samadder NJ, Riegert-Johnson D, Boardman L, Rhodes D, Wick M, Okuno S, Kunze KL, Golafshar M, Uson PLS Jr, Mountjoy L, Ertz-Archambault N, Patel N, Rodriguez EA, Lizaola-Mayo B, Lehrer M, Thorpe CS, Yu NY, Esplin ED, Nussbaum RL, Sharp RR, Azevedo C, Klint M, Hager M, Macklin-Mantia S, Bryce AH, Bekaii-Saab TS, Sekulic A, Stewart AK. Comparison of Universal Genetic Testing vs Guideline-Directed Targeted Testing for Patients With Hereditary Cancer Syndrome. JAMA Oncol. 2021 Feb 1; 7 (2):230-237
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  12. Meagher KM, Curtis SH, Borucki S, Beck A, Srinivasan T, Cheema A, Sharp RR. Communicating unexpected pharmacogenomic results to biobank contributors: A focus group study. Patient Educ Couns. 2021 Feb; 104 (2):242-249 Epub 2020 Sept 02
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  13. Lapid MI, Meagher KM, Giunta HC, Clarke BL, Ouellette Y, Armbrust TL, Sharp RR, Wright RS. Ethical Challenges in COVID-19 Biospecimen Research: Perspectives From Institutional Review Board Members and Bioethicists. Mayo Clin Proc. 2021 Jan; 96 (1):165-173 Epub 2020 Oct 23
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  14. Srinivasan T, Sutton EJ, Beck AT, Cuellar I, Hernandez V, Pacyna JE, Shaibi GQ, Kullo IJ, Lindor NM, Singh D, Sharp RR. Integrating Genomic Screening into Primary Care: Provider Experiences Caring for Latino Patients at a Community-Based Health Center. J Prim Care Community Health. 2021 Jan-Dec; 12:21501327211000242
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  15. Stuttgen K, Pacyna J, Beck A, Kullo IJ, Sharp RR. Patient reactions to receiving negative genomic screening results by mail. Genet Med. 2020 Dec; 22 (12):1994-2002 Epub 2020 July 16
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  16. Master Z, Crowley AP, Smith C, Wigle D, Terzic A, Sharp RR. Stem cell preservation for regenerative therapies: ethical and governance considerations for the health care sector. NPJ Regen Med. 2020 Dec 1; 5 (1):23 Epub 2020 Dec 01
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  17. Hoell C, Wynn J, Rasmussen LV, Marsolo K, Aufox SA, Chung WK, Connolly JJ, Freimuth RR, Kochan D, Hakonarson H, Harr M, Holm IA, Kullo IJ, Lammers PE, Leppig KA, Leslie ND, Myers MF, Sharp RR, Smith ME, Prows CA. Participant choices for return of genomic results in the eMERGE Network. Genet Med. 2020 Nov; 22 (11):1821-1829 Epub 2020 July 16
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  18. Sutton EJ, Beck AT, Gamm KO, McCormick JB, Kullo IJ, Sharp RR. "They're Not Going to Do Nothing for Me": Research Participants' Attitudes towards Elective Genetic Counseling. J Pers Med. 2020 Sep 24; 10 (4) Epub 2020 Sept 24
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  19. Pacyna JE, McCormick JB, Olson JE, Winkler EM, Bublitz JT, Hathcock MA, Sharp RR. Assessing the stability of biobank donor preferences regarding sample use: evidence supporting the value of dynamic consent. Eur J Hum Genet. 2020 Sep; 28 (9):1168-1177 Epub 2020 Apr 23
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  20. Shaibi GQ, Kullo IJ, Singh DP, Hernandez V, Sharp RR, Cuellar I, De Filippis E, Levey S, Breitkopf CR, Mandarino LJ, Yang P, Thibodeau SN, Lindor NM. Returning genomic results in a Federally Qualified Health Center: the intersection of precision medicine and social determinants of health. Genet Med. 2020 Sep; 22 (9):1552-1559 Epub 2020 May 06
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  21. Sher T, Burger CD, DeMartino ES, de Moraes AG, Sharp RR. Resuscitation and COVID-19: Recalibrating Patient and Family Expectations During a Pandemic. Mayo Clin Proc. 2020 Sep; 95 (9):1848-1851 Epub 2020 June 29
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  22. Lim S, DeBruin DA, Leider JP, Sederstrom N, Lynfield R, Baker JV, Kline S, Kesler S, Rizza S, Wu J, Sharp RR, Wolf SM. Developing an Ethics Framework for Allocating Remdesivir in the COVID-19 Pandemic. Mayo Clin Proc. 2020 Sep; 95 (9):1946-1954 Epub 2020 June 20
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  23. Garmany R, Lee CJ, Sharp RR, Kullo IJ. Failure to follow up on a medically actionable finding from direct to consumer genetic testing: A case report. Mol Genet Genomic Med. 2020 Jun; 8 (6):e1252 Epub 2020 Apr 23
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  24. Lynch JA, Sharp RR, Aufox SA, Bland ST, Blout C, Bowen DJ, Buchanan AH, Halverson C, Harr M, Hebbring SJ, Henrikson N, Hoell C, Holm IA, Jarvik G, Kullo IJ, Kochan DC, Larson EB, Lazzeri A, Leppig KA, Madden J, Marasa M, Myers MF, Peterson J, Prows CA, Kulchak Rahm A, Ralston J, Milo Rasouly H, Scrol A, Smith ME, Sturm A, Stuttgen K, Wiesner G, Williams MS, Wynn J, Williams JL. Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network. J Pers Med. 2020 May 13; 10 (2)
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  25. Kochan DC, Winkler E, Lindor N, Shaibi GQ, Olson J, Caraballo PJ, Freimuth R, Pacyna JE, Breitkopf CR, Sharp RR, Kullo IJ. Challenges in returning results in a genomic medicine implementation study: the Return of Actionable Variants Empirical (RAVE) study. NPJ Genom Med. 2020 May 4; 5 (1):19 Epub 2020 May 04
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  26. Wiesner GL, Kulchak Rahm A, Appelbaum P, Aufox S, Bland ST, Blout CL, Christensen KD, Chung WK, Clayton EW, Green RC, Harr MH, Henrikson N, Hoell C, Holm IA, Jarvik GP, Kullo IJ, Lammers PE, Larson EB, Lindor NM, Marasa M, F Myers M, Peterson JF, Prows CA, Ralston JD, Milo Rasouly H, Sharp RR, Smith ME, Van Driest SL, Williams JL, Williams MS, Wynn J, Leppig KA. Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network. J Pers Med. 2020 Apr 27; 10 (2)
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  27. Stuttgen K, Pacyna J, Kullo I, Sharp R. Neutral, Negative, or Negligible? Changes in Patient Perceptions of Disease Risk Following Receipt of a Negative Genomic Screening Result. J Pers Med. 2020 Apr 17; 10 (2)
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  28. Barwise AK, Wilson ME, Sharp RR, DeMartino ES. Ethical Considerations About Clinician Reimbursement for Advance Care Planning. Mayo Clin Proc 2020 Apr; 95 (4):653-657
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  29. Bielinski SJ, St Sauver JL, Olson JE, Larson NB, Black JL, Scherer SE, Bernard ME, Boerwinkle E, Borah BJ, Caraballo PJ, Curry TB, Doddapaneni H, Formea CM, Freimuth RR, Gibbs RA, Giri J, Hathcock MA, Hu J, Jacobson DJ, Jones LA, Kalla S, Koep TH, Korchina V, Kovar CL, Lee S, Liu H, Matey ET, McGree ME, McAllister TM, Moyer AM, Muzny DM, Nicholson WT, Oyen LJ, Qin X, Raj R, Roger VL, Rohrer Vitek CR, Ross JL, Sharp RR, Takahashi PY, Venner E, Walker K, Wang L, Wang Q, Wright JA, Wu TJ, Wang L, Weinshilboum RM. Cohort Profile: The Right Drug, Right Dose, Right Time: Using Genomic Data to Individualize Treatment Protocol (RIGHT Protocol). Int J Epidemiol. 2020 Feb 1; 49 (1):23-24k
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  30. Lewis CM Jr, McCall LI, Sharp RR, Spicer PG. Ethical priority of the most actionable system of biomolecules: the metabolome. Am J Phys Anthropol. 2020 Feb; 171 (2):177-181 Epub 2019 Oct 23
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  31. Meagher KM, Allyse MA, Master Z, Sharp RR. Reexamining the Ethics of Human Germline Editing in the Wake of Scandal. Mayo Clin Proc. 2020 Feb; 95 (2):330-338
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  32. Pacyna JE, Sharp RR. When Moral Intuitions and Empirical Findings Collide: A Case for Revisiting Protectionist Tendencies in Bioethics. AJOB Empir Bioeth. 2020 Jan-Mar; 11 (1):24-26
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  33. Kochan DC, Winkler E, Lindor N, Shaibi GQ, Olson J, Caraballo PJ, Freimuth R, Pacyna JE, Breitkopf CR, Sharp RR, Kullo IJ. Challenges in returning results in a genomic medicine implementation study: the Return of Actionable Variants Empirical (RAVE) study. NPJ Genom Med. 2020; 5:19 Epub 2020 May 04
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  34. Meagher KM, Curtis SH, Gamm KO, Sutton EJ, McCormick JB, Sharp RR. At a Moment's Notice: Community Advisory Board Perspectives on Biobank Communication to Supplement Broad Consent. Public Health Genomics. 2020; 23 (3-4):77-89 Epub 2020 May 12
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  35. Olson JE, Ryu E, Hathcock MA, Gupta R, Bublitz JT, Takahashi PY, Bielinski SJ, St Sauver JL, Meagher K, Sharp RR, Thibodeau SN, Cicek M, Cerhan JR. Characteristics and utilisation of the Mayo Clinic Biobank, a clinic-based prospective collection in the USA: cohort profile. BMJ Open. 2019 Nov 6; 9 (11):e032707 Epub 2019 Nov 06
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  36. Schwarz CG, Kremers WK, Therneau TM, Sharp RR, Gunter JL, Vemuri P, Arani A, Spychalla AJ, Kantarci K, Knopman DS, Petersen RC, Jack CR Jr. Identification of Anonymous MRI Research Participants with Face-Recognition Software. N Engl J Med 2019 Oct 24; 381 (17):1684-1686
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  37. Feinstein MA, Sharp RR, Sandness DJ, Feemster JC, Junna M, Kotagal S, Lipford MC, Tippmann-Peikert M, Boeve BF, Silber MH, St Louis EK. Physician and patient determinants of prognostic counseling in idiopathic REM sleep-behavior disorder. Sleep Med. 2019 Oct; 62:80-85 Epub 2019 Mar 22
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  38. Horrow C, Pacyna JE, Cosenza C, Sharp RR. Examining Physician Interactions with Disease Advocacy Organizations. AJOB Empir Bioeth. 2019 Oct-Dec; 10 (4):222-230 Epub 2019 Aug 26
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  39. Riggan KA, Sharp RR, Allyse M. Where Will We Draw the Line? Public Opinions of Human Gene Editing. Qual Health Res. 2019 Oct; 29 (12):1823-1835 Epub 2019 May 05
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  40. Gordon EJ, Amortegui D, Blancas I, Wicklund C, Friedewald J, Sharp RR. A Focus Group Study on African American Living Donors' Treatment Preferences, Sociocultural Factors, and Health Beliefs About Apolipoprotein L1 Genetic Testing. Prog Transplant. 2019 Sep; 29 (3):239-247 Epub 2019 May 30
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  41. Soni H, Grando A, Aliste MP, Murcko A, Todd M, Mukundan M, Saks M, Horrow C, Sharp R, Dye C, Chern D, Whitfield MJ, Callesen M. Perceptions and Preferences About Granular Data Sharing and Privacy of Behavioral Health Patients. Stud Health Technol Inform. 2019 Aug 21; 264:1361-1365
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  42. Aliste MP, Grando A, Murcko A, Soni H, Todd M, Mukundan M, Saks M, Horrow C, Sharp R, Dye C, Chern D, Whitfield MJ, Callesen M. Design and Pilot Testing of an English and Spanish Behavioral Health Patient Survey on Data Privacy. Stud Health Technol Inform. 2019 Aug 21; 264:1891-1892
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  43. Sutton EJ, Pacyna JE, Hathcock M, McCormick JB, Nowakowski K, Olson JE, Sharp RR. Managing the Unimaginable: Biobank Participant Views on Reconsent for Whole Genome Sequencing of Stored Biospecimens. Biopreserv Biobank. 2019 Aug; 17 (4):296-302 Epub 2019 Mar 26
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  44. Barwise A, Sharp R, Hirsch J. Ethical Tensions Resulting from Interpreter Involvement in the Consent Process. Ethics Hum Res. 2019 Jul; 41 (4):31-35
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  45. Yarborough M, Houk T, Perrault ST, Schenker Y, Sharp RR. Marketing the Research Missions of Academic Medical Centers: Why Messages Blurring Lines Between Clinical Care and Research Are Bad for both Business and Ethics. Camb Q Healthc Ethics. 2019 Jul; 28 (3):468-475
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  46. Suchyta MA, Sharp R, Amer H, Bradley E, Mardini S. Ethicists' Opinions Regarding the Permissibility of Face Transplant. Plast Reconstr Surg. 2019 Jul; 144 (1):212-224
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  47. Horrow C, Pacyna JE, Sutton EJ, Sperry BP, Breitkopf CR, Sharp RR. Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale. Clin Genet. 2019 Jun; 95 (6):704-712 Epub 2019 Apr 03
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  48. Pacyna JE, Radecki Breitkopf C, Jenkins SM, Sutton EJ, Horrow C, Kullo IJ, Sharp RR. Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study. J Med Genet. 2019 May; 56 (5):317-324 Epub 2018 Dec 22
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  49. Gordon EJ, Wicklund C, Lee J, Sharp RR, Friedewald J. A National Survey of Transplant Surgeons and Nephrologists on Implementing Apolipoprotein L1 (APOL1) Genetic Testing Into Clinical Practice. Prog Transplant. 2019 Mar; 29 (1):26-35 Epub 2018 Dec 13
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  50. Brothers KB, Rivera SM, Cadigan RJ, Sharp RR, Goldenberg AJ. A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century. J Law Med Ethics. 2019 Mar; 47 (1):165-172
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  51. Gordon EJ, Amomicronrtegui D, Blancas I, Wicklund C, Friedewald J, Sharp RR. African American Living Donors' Attitudes About APOL1 Genetic Testing: A Mixed Methods Study. Am J Kidney Dis. 2018 Dec; 72 (6):819-833 Epub 2018 Oct 22
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  52. Kullo IJ, Olson J, Fan X, Jose M, Safarova M, Radecki Breitkopf C, Winkler E, Kochan DC, Snipes S, Pacyna JE, Carney M, Chute CG, Gupta J, Jose S, Venner E, Murugan M, Jiang Y, Zordok M, Farwati M, Philogene M, Smith E, Shaibi GQ, Caraballo P, Freimuth R, Lindor NM, Sharp R, Thibodeau SN. The Return of Actionable Variants Empirical (RAVE) Study, a Mayo Clinic Genomic Medicine Implementation Study: Design and Initial Results. Mayo Clin Proc. 2018 Nov; 93 (11):1600-1610
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  53. Sutton EJ, Kullo IJ, Sharp RR. Making pretest genomic counseling optional: lessons from the RAVE study. Genet Med. 2018 Oct; 20 (10):1157-1158 Epub 2018 Feb 01
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  54. Fossey R, Kochan D, Winkler E, Pacyna JE, Olson J, Thibodeau S, Connolly JJ, Harr M, Behr MA, Prows CA, Cobb B, Myers MF, Leslie ND, Namjou-Khales B, Milo Rasouly H, Wynn J, Fedotov A, Chung WK, Gharavi A, Williams JL, Pais L, Holm I, Aufox S, Smith ME, Scrol A, Leppig K, Jarvik GP, Wiesner GL, Li R, Stroud M, Smoller JW, Sharp RR, Kullo IJ. Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience. J Pers Med. 2018 Jan 3; 8 (1) Epub 2018 Jan 03
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  55. Allyse MA, Robinson DH, Ferber MJ, Sharp RR. Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing. Mayo Clin Proc. 2018 Jan; 93 (1):113-120
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  56. Shaibi GQ, Kullo IJ, Singh DP, Sharp RR, De Filippis E, Cuellar I, Hernandez V, Levey S, Radecki Breitkopf C, Olson JE, Cerhan JR, Mandarino LJ, Thibodeau SN, Lindor NM. Developing a Process for Returning Medically Actionable Genomic Variants to Latino Patients in a Federally Qualified Health Center. Public Health Genomics. 2018; 21 (1-2):77-84 Epub 2018 Dec 06
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  57. Allyse M, Aypar U, Bonhomme N, Darilek S, Dougherty M, Farrell R, Grody W, Highsmith WE, Michie M, Nunes M, Otto L, Pabst R, Palomaki G, Runke C, Sharp RR, Skotko B, Stoll K, Wick M. Offering Prenatal Screening in the Age of Genomic Medicine: A Practical Guide. J Womens Health (Larchmt). 2017 Jul; 26 (7):755-761 Epub 2017 Apr 07
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  58. Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS, PGen Study Group. Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 Jun; 95 (2):291-318
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  59. Grando MA, Murcko A, Mahankali S, Saks M, Zent M, Chern D, Dye C, Sharp R, Young L, Davis P, Hiestand M, Hassanzadeh N. A Study to Elicit Behavioral Health Patients' and Providers' Opinions on Health Records Consent. J Law Med Ethics. 2017 Jun; 45 (2):238-259 Epub 2017 July 14
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  60. Bielinski SJ, St Sauver JL, Olson JE, Wieland ML, Vitek CR, Bell EJ, Mc Gree ME, Jacobson DJ, McCormick JB, Takahashi PY, Black JL, Caraballo PJ, Sharp RR, Beebe TJ, Weinshilboum RM, Wang L, Roger VL. Are patients willing to incur out-of-pocket costs for pharmacogenomic testing? Pharmacogenomics J. 2017 Jan; 17 (1):1-3 Epub 2016 Oct 25
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  61. Soni H, Grando A, Murcko A, Bayuk M, Chandrashekar P, Mukundan M, Abrams M, Aliste MP, Hiestand M, Varkey J, Zhou W, Horrow C, Saks M, Sharp R, Whitfield MJ, Callesen M, Dye C, Chern D. Current State of Electronic Consent Processes in Behavioral Health: Outcomes from an Observational Study. AMIA Annu Symp Proc. 2017; 2017:1607-1616 Epub 2018 Apr 16
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  62. Shaibi G, Singh D, De Filippis EA, Hernandez V, Rosenfeld B, Otu E, Montes de Oca G, Levey S, Radecki Breitkopf C, Sharp R, Olson J, Cerhan J, Thibodeau S, Winkler E, Mandarino L. The Sangre Por Salud Biobank: Facilitating Genetic Research in an Underrepresented Latino Community. Public Health Genomics. 2016 Jul 5;
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  63. Nickels AS, Myers GD, Johnson LM, Joshi A, Sharp RR, Lantos JD. Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency? Pediatrics. 2016 Jul; 138 (1) Epub 2016 June 15
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  64. Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 Jun 2; 98 (6):1051-1066 Epub 2016 May 12
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  65. Brothers KB, Holm IA, Childerhose JE, Antommaria AHM, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS, Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium. When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority. J Pediatr. 2016 Jan; 168:226-231.e1 Epub 2015 Oct 23
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  66. Cargill SS, De Bruin D, Eder M, Heitman E, Kaberry JM, McCormick JB, Opp J, Sharp R, Strelnick AH, Winkler SJ, Yarborough M, Anderson EE. Community-engaged research ethics review: Exploring flexibility in federal regulations IRB Ethics and Human Research. 2016; 38: (3)11-8.
  67. Schuermeyer I, Maican A, Sharp R, Bena J, Triozzi PL, Singh AD. Depression, Anxiety, and Regret Before and After Testing to Estimate Uveal Melanoma Prognosis. JAMA Ophthalmol. 2015 Nov 05; 1-6.
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  68. Cho MK, Taylor H, McCormick JB, Anderson N, Barnard D, Boyle MB, Capron AM, Dorfman E, Havard K, Reider C, Sadler J, Schwartz P, Sharp RR, Danis M, Wilfond BS. Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool. Clin Transl Sci. 2015 Aug; 8 (4):376-87 Epub 2015 Mar 10
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  69. Sharp RR, Taylor HA, Brinich MA, Boyle MM, Cho M, Coors M, Danis M, Havard M, Magnus D, Wilfond B. Research ethics consultation: ethical and professional practice challenges and recommendations. Acad Med. 2015 May; 90 (5):615-20
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  70. Harrison KL, Farrell RM, Brinich MA, Highland J, Mercer M, McCormick JB, Tilburt J, Geller G, Marshall P, Sharp RR. 'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics. Health Expect. 2015 Apr; 18(2):250-61. Epub 2012 Dec 28
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  71. Mester JL, Mercer M, Goldenberg A, Moore RA, Eng C, Sharp RR. Communicating with biobank participants: preferences for receiving and providing updates to researchers. Cancer Epidemiol Biomarkers Prev. 2015 Apr; 24 (4):708-12 Epub 2015 Jan 18
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  72. Clift KE, Halverson CM, Fiksdal AS, Kumbamu A, Sharp RR, McCormick JB. Patients' views on incidental findings from clinical exome sequencing. Appl Transl Genom. 2015 Mar; 4:38-43 Epub 2015 Feb 21
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  73. Burke W, Appelbaum P, Dame L, Marshall P, Press N, Pyeritz R, Sharp R, Juengst E. The translational potential of research on the ethical, legal, and social implications of genomics. Genet Med. 2015 Jan; 17 (1):12-20 Epub 2014 June 19
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  74. St Louis EK, Sharp RR. Ethical aspects of organ donation after circulatory death. CONTINUUM Lifelong Learn. Neurol. 2015; 21(5):1445-50.
  75. Burkle CM, Sharp RR, Wijdicks EF. Why brain death is considered death and why there should be no confusion. Neurology. 2014 Oct 14; 83 (16):1464-9 Epub 2014 Sept 12
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  76. Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA, Burke W, eMERGE Act-ROR Committee and CERC Committee//CSER Act-ROR Working Group. Return of genomic results to research participants: the floor, the ceiling, and the choices in between. Am J Hum Genet. 2014 Jun 5; 94 (6):818-26 Epub 2014 May 08
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  77. Koay PP, Sharp RR. Managing Expectational Language: Translational genetic professionals consider the clinical potential of next-generation sequencing technologies. New Genet Soc. 2014 Jun 1; 33 (2):126-148
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  78. McCormick JB, Sharp RR, Farrugia G, Lindor NM, Babovic-Vuksanovic D, Borad MJ, Bryce AH, Caselli RJ, Ferber MJ, Johnson KJ, Lazaridis KN, McWilliams RR, Murray JA, Parker AS, Schahl KA, Wieben ED. Genomic medicine and incidental findings: balancing actionability and patient autonomy. Mayo Clin Proc 2014 Jun; 89 (6):718-21
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  79. Bruce CR, Smith ML, Tawose OM, Sharp RR. Practical guidance for charting ethics consultations. HEC Forum. 2014 Mar; 26(1):79-93.
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  80. Teckman J, Pardee E, Howell RR, Mannino D, Sharp RR, Brantly M, Wanner A, Lamson J. Appropriateness of Newborn Screening for alpha1-Antitrypsin Deficiency. J Pediatr Gastroenterol Nutr. 2014 Feb; 58(2):201-5.
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  81. Kullo IJ, Haddad R, Prows CA, Holm I, Sanderson SC, Garrison NA, Sharp RR, Smith ME, Kuivaniemi H, Bottinger EP, Connolly JJ, Keating BJ, McCarty CA, Williams MS, Jarvik GP. Return of results in the genomic medicine projects of the eMERGE network. Front Genet. 2014; 5:50 Epub 2014 Mar 26
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  82. Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS. The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations. Journal Of Law Medicine & Ethics. 2014 Fal; 42(3):344-55.
  83. Goldenberg AJ, Marshall PA, Sharp RR. Next-generation disadvantages: identifying potential barriers to integrating genomics into underserved medical settings. Per Med. 2013 Sep; 10 (7):623-625
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  84. Yarborough M, Edwards K, Espinoza P, Geller G, Sarwal A, Sharp R, Spicer P. Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research. Clin Transl Sci. 2013 Aug; 6(4):310-3. Epub 2013 Jan 14.
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  85. Cho D, McGowan ML, Metcalfe J, Sharp RR. Expanded carrier screening in reproductive healthcare: perspectives from genetics professionals. Hum Reprod. 2013 Jun; 28(6):1725-30. Epub 2013 Apr 14.
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  86. McGowan ML, Glinka A, Highland J, Asaad G, Sharp RR. Genetics patients' perspectives on clinical genomic testing Per Med. 2013 Jun 1; 10(4):339-347.
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  87. Heald B, Plesec T, Liu X, Pai R, Patil D, Moline J, Sharp RR, Burke CA, Kalady MF, Church J, Eng C. Implementation of universal microsatellite instability and immunohistochemistry screening for diagnosing lynch syndrome in a large academic medical center. J Clin Oncol. 2013 Apr 1; 31(10):1336-40. Epub 2013 Feb 11.
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  88. McGowan ML, Cho D, Sharp RR. The changing landscape of carrier screening: expanding technology and options?. Health Matrix Clevel. 2013 Spring; 23(1):15-33.
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  89. McGowan ML, Sharp RR. Justice in the context of family balancing. Sci Technol Human Values. 2013 Mar 1; 38(2).
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  90. McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS. The establishment of research ethics consultation services (RECS): an emerging research resource. Clin Transl Sci. 2013 Feb; 6 (1):40-4 Epub 2012 Dec 06
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  91. Brinich MA, Mercer MB, Sharp RR. An analysis of online messages about probiotics. BMC Gastroenterol 2013 Jan 11; 13:5
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  92. Koay PP, Sharp RR. The role of patient advocacy organizations in shaping genomic science. Annu Rev Genomics Hum Genet. 2013; 14:579-95. Epub 2013 Jul 12.
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  93. Harrison KL, Geller G, Marshall P, Tilburt J, Mercer M, Brinich MA, Highland J, Farrell RM, Sharp RR. Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy. AJOB Prim Res. 2012 Jul 1; 3(3):12-20. Epub 2012 Jun 19.
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  94. Uhlmann WR, Sharp RR. Genetic testing integration panels (GTIPs): a novel approach for considering integration of direct-to-consumer and other new genetic tests into patient care. J Genet Couns. 2012 Jun; 21(3):374-81. Epub 2012 Jan 14.
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  95. Teng K, Eng C, Hess CA, Holt MA, Moran RT, Sharp RR, Traboulsi EI. Building an innovative model for personalized healthcare. Cleve Clin J Med. 2012 Apr; 79 Suppl 1:S1-9.
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  96. Beskow LM, Burke W, Fullerton SM, Sharp RR. Offering aggregate results to participants in genomic research: opportunities and challenges. Genet Med. 2012 Apr; 14(4):490-6. Epub 2012 Jan 26.
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  97. McCormick JB, Hammer RR, Farrell RM, Geller G, James KM, Loftus EV Jr, Mercer MB, Tilburt JC, Sharp RR. Experiences of patients with chronic gastrointestinal conditions: in their own words. Health Qual Life Outcomes. 2012 Mar 8; 10:25 Epub 2012 Mar 08
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  98. Mercer M, Brinich MA, Geller G, Harrison K, Highland J, James K, Marshall P, McCormick JB, Tilburt J, Achkar JP, Farrell RM, Sharp RR. How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndrome. J Clin Gastroenterol. 2012 Feb; 46(2):138-44.
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  99. Goldenberg AJ, Sharp RR. The ethical hazards and programmatic challenges of genomic newborn screening. JAMA. 2012 Feb 1; 307(5):461-2.
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  100. Landy DC, Brinich MA, Colten ME, Horn EJ, Terry SF, Sharp RR. How disease advocacy organizations participate in clinical research: a survey of genetic organizations. Genet Med. 2012 Feb; 14(2):223-8.
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  101. Lehmann LS, Kaufman DJ, Sharp RR, Moreno TA, Mountain JL, Roberts JS, Green RC. Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing. Genet Med. 2012 Feb; 14(2):268-73. Epub 2012 Jan 12.
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  102. Caga-anan EC, Smith L, Sharp RR, Lantos JD. Testing children for adult-onset genetic diseases. Pediatrics. 2012 Jan; 129(1):163-7. Epub 2011 Dec 05.
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  103. Sharp RR, Goldlust ME, Eng C. Addressing gaps in physician education using personal genomic testing. Genet Med 2011 Aug; 13 (8):750-1
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  104. Silver K, Kukulka G, Gorniewicz J, Rayman K, Sharp R. Genetic susceptibility testing for beryllium: worker knowledge, beliefs, and attitudes. Am J Ind Med. 2011 Jul; 54(7):521-32. Epub 2011 May 06.
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  105. Bruce CR, Smith ML, Hizlan S, Sharp RR. A systematic review of activities at a high-volume ethics consultation service. J Clin Ethics. 2011 Summer; 22(2):151-64.
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  106. Chubak B, Heald B, Sharp RR. Informed consent to microsatellite instability and immunohistochemistry screening for Lynch syndrome. Genet Med. 2011 Apr; 13(4):356-60.
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  107. Sharp RR. Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small. Genet Med. 2011 Mar; 13(3):191-4.
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  108. Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Patient perspectives on group benefits and harms in genetic research. Public Health Genomics. 2011; 14(3):135-42. Epub 2010 Oct 08.
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  109. National Heart, Lung and Blood Institute working group, Fabsitz RR, McGuire A, Sharp RR, Puggal M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, Fullerton SM, Gabriel S, Gachupin F, James C, Jarvik GP, Kittles R, Leib JR, O'Donnell C, O'Rourke PP, Rodriguez LL, Schully SD, Shuldiner AR, Sze RK, Thakuria JV, Wolf SM, Burke GL. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ Cardiovasc Genet. 2010 Dec; 3(6):574-80.
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  110. Sharp RR, Landy DC. The financing of clinical genetics research by disease advocacy organizations: A review of funding disclosures in biomedical journals. Am J Med Genet A. 2010 Dec; 152A(12):3051-6.
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  111. Sharp RR, McGowan ML, Verma JA, Landy DC, McAdoo S, Carson SA, Simpson JL, McCullough LB. Moral attitudes and beliefs among couples pursuing PGD for sex selection. Reprod Biomed Online. 2010 Dec; 21(7):838-47. Epub 2010 Sep 26.
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  112. Altshuler DM, Gibbs RA, Peltonen L, Altshuler DM, Gibbs RA, Peltonen L, Dermitzakis E, Schaffner SF, Yu F, Peltonen L, Dermitzakis E, Bonnen PE, Altshuler DM, Gibbs RA, de Bakker PI, Deloukas P, Gabriel SB, Gwilliam R, Hunt S, Inouye M, Jia X, Palotie A, Parkin M, Whittaker P, Yu F, Chang K, Hawes A, Lewis LR, Ren Y, Wheeler D, Gibbs RA, Muzny DM, Barnes C, Darvishi K, Hurles M, Korn JM, Kristiansson K, Lee C, McCarrol SA, Nemesh J, Dermitzakis E, Keinan A, Montgomery SB, Pollack S, Price AL, Soranzo N, Bonnen PE, Gibbs RA, Gonzaga-Jauregui C, Keinan A, Price AL, Yu F, Anttila V, Brodeur W, Daly MJ, Leslie S, McVean G, Moutsianas L, Nguyen H, Schaffner SF, Zhang Q, Ghori MJ, McGinnis R, McLaren W, Pollack S, Price AL, Schaffner SF, Takeuchi F, Grossman SR, Shlyakhter I, Hostetter EB, Sabeti PC, Adebamowo CA, Foster MW, Gordon DR, Licinio J, Manca MC, Marshall PA, Matsuda I, Ngare D, Wang VO, Reddy D, Rotimi CN, Royal CD, Sharp RR, Zeng C, Brooks LD, McEwen JE, International HapMap 3 Consortium. Integrating common and rare genetic variation in diverse human populations. Nature. 2010 Sep 2; 467 (7311):52-8
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  113. Smith ML, Sharp RR, Weise K, Kodish E. Toward competency-based certification of clinical ethics consultants: a four-step process. J Clin Ethics. 2010 Spring; 21(1):14-22.
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  114. Eng C, Sharp RR. Bioethical and clinical dilemmas of direct-to-consumer personal genomic testing: the problem of misattributed equivalence. Sci Transl Med. 2010 Feb 3; 2(17):17cm5.
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  115. Foster MW, Mulvihill JJ, Sharp RR. Evaluating the utility of personal genomic information. Genet Med. 2009 Aug; 11(8):570-4.
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  116. Yarborough M, Sharp RR. Public trust and research a decade later: what have we learned since Jesse Gelsinger's death? Mol Genet Metab. 2009 May; 97(1):4-5. Epub 2009 Feb 20.
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  117. Sharp RR, Achkar JP, Brinich MA, Farrell RM. Helping patients make informed choices about probiotics: a need for research. Am J Gastroenterol. 2009 Apr; 104(4):809-13.
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  118. Landy DC, Coverdale JH, McCullough LB, Sharp RR. Prepublication review of medical ethics research: cause for concern. Acad Med. 2009 Apr; 84(4):495-7.
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  119. Yarborough M, Fryer-Edwards K, Geller G, Sharp RR. Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors. Acad Med. 2009 Apr; 84(4):472-7.
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  120. Hutchinson JF, Sharp RR. Karma, reincarnation, and medicine: Hindu perspectives on biomedical research. Genomic Medicine. 2009; 2:107-11.
  121. Sharp RR, Yarborough M, Walsh JW, Ethical, Legal, Social Issues Working Group of the Alpha-1 Foundation. Responsible patient advocacy: perspectives from the Alpha-1 Foundation. Am J Med Genet A. 2008 Nov 15; 146A(22):2845-50.
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  122. Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS. Patients' views on identifiability of samples and informed consent for genetic research. Am J Bioeth. 2008 Oct; 8(10):62-70.
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  123. Sharp RR, Scott AL, Landy DC, Kicklighter LA. Who is buying bioethics research? Am J Bioeth 2008 Aug; 8 (8):54-8; discussion W1-2
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  124. Foster MW, Sharp RR. Out of sequence: how consumer genomics could displace clinical genetics. Nat Rev Genet. 2008 Jun; 9(6):419.
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  125. Chulada PC, Vahdat HL, Sharp RR, DeLozier TC, Watkins PB, Pusek SN, Blackshear PJ. The Environmental Polymorphisms Registry: a DNA resource to study genetic susceptibility loci. Hum Genet. 2008 Mar; 123(2):207-14. Epub 2008 Jan 10.
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  126. Foster MW, Sharp RR. The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA. Personalized Medicine. 2008; 5:399-404.
  127. Sharp RR. Teaching rounds and the experience of death as a medical ethicist. J Med Ethics. 2008 Jan; 34(1):60-2.
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  128. Yarborough M, Sharp RR. Bioethics consultation and patient advocacy organizations: expanding the dialogue about professional conflicts of interest. Camb Q Healthc Ethics. 2007 Winter; 16(1):74-81.
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  129. Foster MW, Sharp RR. Share and share alike: deciding how to distribute the scientific and social benefits of genomic data. Nat Rev Genet. 2007 Aug; 8(8):633-9. Epub 2007 Jul 03.
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  130. Sharp RR, Foster MW. Grappling with groups: protecting collective interests in biomedical research. J Med Philos. 2007 Jul-Aug; 32(4):321-37.
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  131. Chwang E, Landy DC, Sharp RR. Views regarding the training of ethics consultants: a survey of physicians caring for patients in ICU. J Med Ethics. 2007 Jun; 33(6):320-4.
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  132. Foster MW, Royal CD, Sharp RR. The routinisation of genomics and genetics: implications for ethical practices. J Med Ethics. 2006 Nov; 32(11):635-8.
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  133. Foster MW, Mulvihill JJ, Sharp RR. Investments in cancer genomics: who benefits and who decides. Am J Public Health. 2006 Nov; 96(11):1960-4. Epub 2006 Oct 03.
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  134. Resnik DB, Sharp RR. Protecting third parties in human subjects research. IRB. 2006 Jul-Aug; 28(4):1-7.
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  135. Sharp RR, Yarborough M. Informed trust and the financing of biomedical research. J Law Med Ethics. 2006 Summer; 34(2):460-4.
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  136. Foster MW, Sharp RR. Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations. Hum Mol Genet. 2006 Apr 15; 15 Spec No 1:R45-9.
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  137. Silver K, Sharp RR. Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease. J Occup Environ Med. 2006 Apr; 48(4):434-43.
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  138. Brody BA, McCullough LB, Sharp RR. Consensus and controversy in clinical research ethics. JAMA. 2005 Sep 21; 294(11):1411-4.
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  139. Resnik DB, Zeldin DC, Sharp RR. Research on environmental health interventions: ethical problems and solutions. Account Res. 2005 Apr-Jun; 12(2):69-101.
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  140. Foster MW, Sharp RR. Will investments in large-scale prospective cohorts and biobanks limit our ability to discover weaker, less common genetic and environmental contributors to complex diseases? Environ Health Perspect. 2005 Feb; 113(2):119-22.
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  141. Foster MW, Sharp RR. Will investments in biobanks, prospective cohorts, and markers of common patterns of variation benefit other populations for drug response and disease susceptibility gene discovery? Pharmacogenomics J. 2005; 5(2):75-80.
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  142. Foster MW, Sharp RR. Beyond race: towards a whole-genome perspective on human populations and genetic variation. Nat Rev Genet. 2004 Oct; 5(10):790-6.
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  143. Sharp RR, Yudell MA, Wilson SH. Shaping science policy in the age of genomics. Nat Rev Genet. 2004 Apr; 5(4):311-6.
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  144. Sharp RR. Ethical issues in environmental health research. Environ Health Perspect. 2003 Nov; 111(14):1786-8.
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  145. Sharp RR, de Serres F, Newman L, Sandhaus RA, Walsh JW, Hood E, Harry GJ. Environmental, occupational, and genetic risk factors for alpha-1 antitrypsin deficiency. Environ Health Perspect. 2003 Nov; 111(14):1749-52.
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  146. Lavery JV, Upshur RE, Sharp RR, Hofman KJ. Ethical issues in international environmental health research. Int J Hyg Environ Health. 2003 Aug; 206(4-5):453-63.
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  147. Sharp RR, Foster MW. An analysis of research guidelines on the collection and use of human biological materials from American Indian and Alaskan Native communities. Jurimetrics. 2002 Winter; 42(2):165-86.
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  148. Foster MW, Sharp RR. Race, ethnicity, and genomics: social classifications as proxies of biological heterogeneity. Genome Res. 2002 Jun; 12(6):844-50.
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  149. Sharp RR, Foster MW. Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations. Environ Health Perspect. 2002 Apr; 110 Suppl 2:145-8.
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  150. Yarborough M, Sharp RR. Restoring and preserving trust in biomedical research. Acad Med. 2002 Jan; 77(1):8-14.
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  151. Christiani DC, Sharp RR, Collman GW, Suk WA. Applying genomic technologies in environmental health research: challenges and opportunities. J Occup Environ Med. 2001 Jun; 43(6):526-33.
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  152. Foster MW, Sharp RR, Mulvihill JJ. Pharmacogenetics, race, and ethnicity: social identities and individualized medical care. Ther Drug Monit. 2001 Jun; 23(3):232-8.
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  153. Sharp RR. The evolution of predictive genetic testing: deciphering gene-environment interactions. Jurimetrics. 2001; 41:145-63.
  154. Sharp RR, Barrett JC. The environmental genome project: ethical, legal, and social implications. Environ Health Perspect. 2000 Apr; 108(4):279-81.
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  155. Sharp RR, Foster MW. Involving study populations in the review of genetic research. J Law Med Ethics. 2000 Spring; 28(1):41-51, 3.
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  156. Foster MW, Sharp RR. Genetic research and culturally specific risks: one size does not fit all. Trends Genet. 2000 Feb; 16(2):93-5.
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  157. Sharp RR, Barrett JC. The Environmental Genome Project and bioethics. Kennedy Inst Ethics J. 1999 Jun; 9(2):175-88.
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  158. Foster MW, Sharp RR, Freeman WL, Chino M, Bernsten D, Carter TH. The role of community review in evaluating the risks of human genetic variation research. Am J Hum Genet. 1999 Jun; 64(6):1719-27.
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  159. Wilcox AJ, Taylor JA, Sharp RR, London SJ. Genetic determinism and the overprotection of human subjects. Nat Genet 1999 Apr; 21 (4):362
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