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Clinical Studies

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  • ADVANCE 2: ADdressing Views of African AmericaNs on CancEr Screening (Advance 2) Rochester, Minn., Scottsdale/Phoenix, Ariz., Jacksonville, Fla.

    The purpose of this research study is to understand the views and experiences of Non-Hispanic Black women with a diagnosis or who support a family member with breast or ovarian cancer. We also want to know participant thoughts on genetic testing for cancer risk and research participation.

    This is a qualitative interview study. Study participation involved talking on the phone or videoconference (e.g., Zoom) for about 1 - 1 1/2 hours with a researcher.

  • Communities During COVID – Focus Groups Rochester, Minn., Scottsdale/Phoenix, Ariz., Jacksonville, Fla.

    The study seeks to understand the impacts the COVID pandemic has brought to the communities, how communities are coping and how we can build resilience to prepare future health crises.

  • Communities During COVID - Key Informants Rochester, Minn., Scottsdale/Phoenix, Ariz., Jacksonville, Fla.

    The study seeks to understand the impacts the COVID pandemic has brought to the communities, how communities are coping and how we can build resilience to prepare for future health crises.

Closed for Enrollment

  • ADORE: impAct of coviD On feRtility carE (ADORE) Rochester, Minn.

    The purpose of this study is to examine the experiences of women and their partner seeking reproductive endocrinology and infertility (REI) care during the COVID-19 outbreak.

     

  • ADVANCE: ADdressing Views of African AmericaNs on CancEr Screening (ADVANCE) Rochester, Minn., Scottsdale/Phoenix, Ariz., Jacksonville, Fla.

    The purpose of this research study is to understand the views and experiences of African American women with a diagnosis or who support a family member with breast or ovarian cancer. We also want to know participant thoughts on genetic testing for cancer risk.

    This is a qualitative interview study. Study participation involves talking on the phone or videoconference (e.g., Zoom) for about 1 hour with a researcher.

     

  • ASPIRE II: Acknowledging Disparities In Pregnancy Care During COVID-19 (ASPIRE II) Rochester, Minn., Jacksonville, Fla.

    The purpose of this study is to assess the experience of low income pregnant women at an inner-city health system with seeking and receiving care. 

    Significant disparities in health care and birth outcomes are seen in the US during normal times. During COVID-19, limited access to health care resources, social distancing and stay at home orders, and shortages of food and other necessities may exacerbate these disparities. 

  • Beta Testing of the Mayo Clinic GeneGuide Application for Targeted Genomic Testing and Genomics Education Rochester, Minn.

    The purpose of this study is for The Center for Individualized Medicine (CIM) at Mayo Clinic to discover and translate genomic and molecular science into personalized medical applications

  • Family Experiences and Advice on Diagnosis and Support (FEADS) Rochester, Minn.

    The purpose of this study is to survey individuals and families on their experience of receiving a diagnosis of a sex chromosome abnormality and any follow-up services or support they received, and to solicit information on suggested best practices for the return of a diagnosis and subsequent support services in clinical and social care.

  • Going FAR: Uterine Fibroids and Reproduction Rochester, Minn.

    The purpose of this study is:

    • To assess how women who have undergone treatment for UF view the experience, whether they prioritize experimental approaches to remedy any impacts on their fertility, and the psychosocial and socio-economic factors most important to them in considering the preservation or restoration of fertility.
    • To assess the potential perceptions or experiences of women of African descent compared with women of other ethnic backgrounds of disparities in the symptoms and how treatment options for UF may impact willingness or ability to pursue approaches to fertility maintenance and restoration.
  • Q-Sort on Understandings and Ideals in Prenatal Screening/Testing Rochester, Minn.

    The purpose of this study is to identify the range of stakeholders' viewpoints, including values, preferences and concerns, relating to complex genetic information generated prenatally and to examine differences in values between professional/personal groups.

  • Return of Pharmacogenomic Results Through Direct-to-Consumer Online Portal: Consumer Experiences Rochester, Minn.

    The purpose of this study is to explore the experiences of consumers in receiving results on genetic risk of malignant hyperthermia and pseudocholinesterase deficiency via an online direct-to-consumer portal that includes robust consumer education and guidance on physician consultation, and to explore the experiences of consumers of MCGG in purchasing and using the product.

     

  • The OXYGEN Study: The Impact of Genomic Diagnoses of Sex Chromosome Aneuploidies on Lifecourse Quality of Life Rochester, Minn.

    This study is designed to explore the experiences of individuals growing up with a genetic diagnosis of SCAs and their families.

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