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  • Prospective Cohort of Patients with Metabolic Liver Disease Jacksonville, Fla.

    The purpose of this research is to create a registry of patients having or at risk for metabolic liver disease for investigations into the molecular pathogenesis of cirrhosis, liver cancer, and end-stage liver disease.

Closed for Enrollment

  • Attitudes and Uptake of Return of Individual Hepatitis Viral Load Test Results Jacksonville, Fla.

    The purpose of this study is to understand if there are race-specific or other demographic-specific attitudes about voluntary testing for hepatitis B and C virus infection and return of individual research results that could have implication for an individual's risk of developing hepatitis-related liver cancer. Understanding these attitudes is a necessary first step to developing effective intervention strategies for liver cancer prevention.
  • Biospecimen Resource for Hepatocellular Carcinoma Research Jacksonville, Fla.

    The purpose of this study is to create a registry of patients with liver cancer (also known as hepatocellular carcinoma) and individuals with no history of liver cancer in order to characterize risk factors for liver cancer and identify biomarkers for early detection of liver cancer. 

     

     
  • Engaging patients and communities in hepatobiliary cancer research Jacksonville, Fla.

    The purpose of this study is to assess community needs and attitudes toward participating in hepatobiliary cancer research for relevant, translatable, and sustainable research partnership.
  • Prospective Familial Cohort For Pancreas Research (PARTNER) Rochester, Minn., Jacksonville, Fla.

    The aim of this study is to establish and actively follow a prospective cohort of individuals from pancreas cancer families to ascertain the development of pancreatic cancer and other cancer types in these families.  

    We will establish and maintain a prospective cohort of individuals who do not have pancreas cancer but are members of a kindred with two or more blood-related family members with pancreas cancer, or with at least one blood-related family member with pancreas cancer and one relative who carries a variant in a gene known to be associated with pancreatic cancer.  

    We will administer questionnaires to these individuals every two years to ascertain diagnosis of pancreas cancer and other cancer types in these subjects and their families. 

    We may request a onetime blood sample (up to 50cc) from these individuals in the future.  

     

     

     
  • Two Cancers, One Gene (TCOG) Rochester, Minn.

    The overall purpose of this study is to understand the factors that increase susceptibility and expression of pancreatic cancer and melanoma in high risk families.  Individuals who are affected with pancreas cancer and melanoma, as well as those without either cancer who have been identified as 1st or 2nd degree relatives of family members with pancreas cancer and melanoma, will be asked to participate. The participant will be asked to complete a survey about their health and family history of cancer and to give a blood sample for specific gene testing and storage for future research studies.
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