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  • NF1-OPG, Developing Evidence-Based Criteria for Initiating Treatment for Neurofibromatosis Type 1 Associated Optic Pathway Glioma Rochester, Minn.

    The purpose of this research study is to understand the natural history of vision in patients with OPG and determine if there are factors (e.g. age at diagnosis, male/female, tumor location, features of the MRI exam, etc) that predict future vision loss or change in tumor size.

    Another purpose of the study is to collect and store blood and tissue samples to use for future research to evaluate if there are certain variations in DNA, RNA, or proteins that predict the likelihood of an OPG to grow or cause vision loss.

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  • Mayo Clinic Video-Oculography: A Descriptive Pilot Study Rochester, Minn.

    The purpose of this study is to evaluate changes in torsional eye position that accompany strabismus and nystagmus.  These changes, which cannot be visualized on clinical examination, will provide new information about the neurophysiology of these ocular motor disturbances. 

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