A Study for the Registry Enrollment of Patients onto the Childhood Cancer Research Network (CCRN) of the Children's Oncology Group


  • Study type

  • Study IDs

  • Describes the nature of a clinical study. Types include:

    • Observational study — observes people and measures outcomes without affecting results.
    • Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
    • Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
  • Site IRB
    • Rochester, Minnesota: 08-000030
    NCT ID: NCT01117168
    Sponsor Protocol Number: ACCRN07

About this study

The purpose of this study is to obtain informed consent from parents (or the patient when appropriate) of infants, children, adolescents, and young adults newly diagnosed with cancer to be enrolled onto the registry of the Childhood Cancer Research Network and/or for permission to be contacted in the future to consider participating in research studies.



Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.

Inclusion Criteria

  • Pre-CCRN Entry
  • All new patients seen in COG member institutions with any of the following diagnoses are eligible
    • All cancer cases with an ICD-O histologic behavior code of  2 (carcinoma in situ) or 3 (malignant)
    • All lesions of the central nervous system regardless of behavior, i.e., benign, borderline or malignant
    • The benign/borderline conditions which will be reportable by agreement shall include
      • Mesoblastic nephroma
      • All teratomas, regardless of locations
      • Theca cell granulosa cell tumor
      • Lymphoproliferative disease
      • Ganglioneuroma
      • Myeloproliferative disease
      • Langerhan's Cell histiocytosis

Participating Mayo Clinic locations

Study statuses change often. Please contact us for help.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Carola A Arndt, M.D.

Closed for enrollment

Contact information:

Cancer Center Clinical Trials Referral Office


More information


  • After injuries, cancer is the leading cause of death in children younger than 15 years in the United States. Despite dramatic increases in 5-year survival rates, more than 100,000 person-years of life are lost to childhood cancer each year. The exact proportion of pediatric cancer patients who receive care at centers that utilize up-to-date therapeutic protocols [such as those affiliated with the Childrens Cancer Group (CCG) or the Pediatric Oncology Group (POG)] remains unknown. The purpose of this study was to estimate the proportion and geographic distribution of childhood cancer patients in the United States who are seen at participating centers of the CCG and the POG. Read More on PubMed

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

Additional contact information

Cancer-related trials contact form

Phone: 855-776-0015 (toll-free)

International patient clinical studies questions