A Study for the Registry Enrollment of Patients onto the Childhood Cancer Research Network (CCRN) of the Children's Oncology Group
About this study
The purpose of this study is to obtain informed consent from parents (or the patient when appropriate) of infants, children, adolescents, and young adults newly diagnosed with cancer to be enrolled onto the registry of the Childhood Cancer Research Network and/or for permission to be contacted in the future to consider participating in research studies.
Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.
- Pre-CCRN Entry
- All new patients seen in COG member institutions with any of the following diagnoses are eligible
- All cancer cases with an ICD-O histologic behavior code of 2 (carcinoma in situ) or 3 (malignant)
- All lesions of the central nervous system regardless of behavior, i.e., benign, borderline or malignant
- The benign/borderline conditions which will be reportable by agreement shall include
- Mesoblastic nephroma
- All teratomas, regardless of locations
- Theca cell granulosa cell tumor
- Lymphoproliferative disease
- Myeloproliferative disease
- Langerhan's Cell histiocytosis
Participating Mayo Clinic locations
Study statuses change often. Please contact us for help.
|Mayo Clinic Location
Mayo Clinic principal investigator
Carola A Arndt, M.D.
Closed for enrollment
Cancer Center Clinical Trials Referral Office
After injuries, cancer is the leading cause of death in children younger than 15 years in the United States. Despite dramatic increases in 5-year survival rates, more than 100,000 person-years of life are lost to childhood cancer each year. The exact proportion of pediatric cancer patients who receive care at centers that utilize up-to-date therapeutic protocols [such as those affiliated with the Childrens Cancer Group (CCG) or the Pediatric Oncology Group (POG)] remains unknown. The purpose of this study was to estimate the proportion and geographic distribution of childhood cancer patients in the United States who are seen at participating centers of the CCG and the POG.
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Study Results Summary
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Supplemental Study Information
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