The Colon Cancer Family Registry at Mayo Clinic is part of an international research consortium for investigators who conduct population-based and clinic-based interdisciplinary studies on the genetic and molecular epidemiology of colorectal cancer and its behavioral implications.
A central goal of the Colon Cancer Family Registry is the translation of colorectal cancer research to the clinical and prevention settings for the benefit of registry participants and the general public. The registry identifies colorectal cancer susceptibility genes, analyzes gene interactions in colorectal cancer etiology, conducts ongoing molecular characterization of participants, and translates research findings to better colorectal cancer prevention and treatment.
The Colon Cancer Family Registry has information and biospecimens contributed by more than 15,000 families across the spectrum of risk for colorectal cancer and from population-based controls or relative controls.
The Colon Cancer Family Registry collects detailed information about study participants and their relatives to help create a resource that can be leveraged by colorectal cancer researchers around the world.
The directors of the Colon Cancer Family Registry are Stephen N. Thibodeau, Ph.D., and Rish K. Pai, M.D., Ph.D.
Dr. Thibodeau is a medical geneticist at Mayo Clinic in Rochester, Minnesota, with an interest in cancer genetics. He's also a professor of laboratory medicine and pathology at Mayo Clinic College of Medicine and Science. Dr. Pai is a pathologist at Mayo Clinic in Phoenix, Arizona, with an interest in gastrointestinal pathology and hepatobiliary pathology. He's also a professor of laboratory medicine and pathology at Mayo Clinic College of Medicine.
The co-investigator of the registry is Noralane M. Lindor, M.D. Dr. Lindor is a family physician and medical geneticist at Mayo Clinic in Phoenix, Arizona. She's also a professor of medical genetics at Mayo Clinic College of Medicine and Science and an emeritus member of the Department of Health Sciences Research.
The Colon Cancer Family Registry is affiliated with the Department of Health Sciences Research at Mayo Clinic.