Sally Okun, R.N.

Vice President for Advocacy, Policy and Patient Safety, PatientsLikeMe

Watch Sally Okun's Transform 2013 talk.

Watch the Transform 2013 Digging In session "How Do We Empower People in Their Own Care?"

Sally Okun is responsible for PatientsLikeMe patient advocacy initiatives, participates and contributes to health policy discussions at the national and global level, and is the company's liaison with government and regulatory agencies.

Okun joined the company in 2008 as the manager of Health Data Integrity and Patient Safety overseeing the site's medical ontology, including the curation of patient-reported health data and an ever-evolving patient vocabulary. Okun also developed and manages the PatientsLikeMe Drug Safety and Pharmacovigilance Platform.

Prior to joining PatientsLikeMe, Okun, a registered nurse, practiced as a palliative and end-of-life care specialist. In addition, as an independent consultant, she contributed to multiple clinical, research and educational projects focused on palliative and end-of-life care for numerous clients, including Brown University, Harvard Medical School, the Massachusetts Department of Mental Health, the Hospice Education Network and the Robert Wood Johnson Foundation.

Okun participates on the Institute of Medicine's Roundtable on Value & Science-Driven Health Care as a member of the Clinical Effectiveness Research Innovation Collaborative, the Evidence Communication Innovation Collaborative and the Best Practices Innovation Collaborative.

Okun received her nursing diploma from the Hospital of St. Raphael School of Nursing; her baccalaureate degree in nursing from Southern Connecticut State University, and her master's degree from The Heller School for Social Policy and Management at Brandeis University.

She completed her study of palliative care and ethics at Memorial Sloan-Kettering Cancer Center and was a fellow at the National Library of Medicine program in biomedical informatics.