Caregiver Registry


About this study

Currently transplant caregivers are viewed as healthy volunteers caring for patients following heart or lung transplant. However research has revealed that thoracic transplant caregivers have increased mood disorders, distress, and high caregiver burden, especially while caring for patients on the organ transplant waiting list. By monitoring caregiver traits and behaviors we will be better able to provide care and services for CG to improve both CG and patient outcomes.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Solid organ transplant candidates (18 years or older) on deferred, active, or inactive transplant waiting lists.
  • Nominated adult caregivers (18 years or older) of solid organ transplant patients listed for deceased donor solid organ transplantation.
  • CG identified in the electronic medical record.

Exclusion Criteria:

  • Individuals unwilling to provide consent.
  • Patients or CG unable to complete questionnaires or consents due to limited English proficiency.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Cassie Kennedy, M.D.

Open for enrollment

Contact information:

Karin Thompson

(507) 266-7765

More information


Publications are currently not available