A Study to Establish a Vascular Anomalies Tissue Repository


About this study

The purpose of this study is to develop a resource (bank) of biospecimens and data collected from individuals with a vascular tumor or malformation to facilitate discovery and development of novel biomarkers for diagnosis and treatment of disease, better elucidate etiologic factors relating to vascular anomalies, and novel targeted therapeutic strategies for vascular anomalies.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Male or female patients, aged 0 to 100 with a vascular tumor or malformation.
  • Able to provide Informed Consent (or parental ability to provide informed consent if under age 18).
  • Have a Mayo Clinic Number.

Exclusion Criteria:

  • Individuals who are unable to sign consent (e.g., mentally challenged, those declared legally incompetent, non-english speaking) or whose parents are unable to provide informed consent if under age 18.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Megha Tollefson, M.D.

Open for enrollment

Contact information:

Charlene Blanchard CCRP

(507) 538-8152


More information


Publications are currently not available