A Study to Assess Educational Needs and Perceived Barriers to Care Among Individuals with Chronic Health Conditions and Their Caregivers


  • Study type

  • Study IDs

  • Describes the nature of a clinical study. Types include:

    • Observational study — observes people and measures outcomes without affecting results.
    • Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
    • Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
  • Site IRB
    • Jacksonville, Florida: 18-011049
    • Rochester, Minnesota: 18-011049
    Sponsor Protocol Number: 18-011049

About this study

The purpose of this study is to assess educational needs and barriers to care in both patients with cancer and other serious chronic conditions, as well as their caregivers.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.

See eligibility criteria

Inclusion Criteria:

  • At least 18 years of age.
  • Able to read and write in English.
  • Be a patient who has been living with one of the following health conditions for at least 6 months:
    • High blood pressure;
    • Heart disease / clogged arteries;
    • HIV / AIDS;
    • Congestive heart failure;
    • Dementia or Alzheimer’s disease;
    • Peripheral neuropathy / nerve damage;
    • COPD or other lung problem;
    • Rheumatoid arthritis;
    • Osteoarthritis;
    • Diabetes;
    • Cancer;
    • Stroke.

Exclusion Criteria: 

  • Cognitive impairment  interfering with completion of the survey.


Participating Mayo Clinic locations

Study statuses change often. Please contact us for help.

Mayo Clinic Location Status Contact

Jacksonville, Fla.

Mayo Clinic principal investigator

Cindy Tofthagen, Ph.D.

Contact us for the latest status

Contact information:

No Contact

Rochester, Minn.

Mayo Clinic principal investigator

Cindy Tofthagen, Ph.D.

Open for enrollment

Contact information:

Catherine Krecke CCRP



More information


Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

Additional contact information

Cancer-related trials contact form

Phone: 855-776-0015 (toll-free)

International patient clinical studies questions