Growth, Development and Quality of Life in Pediatric Patients after Cone Reconstruction for Ebstein Anomaly

Overview

About this study

In this study, we seek to perform a survey of patients who had surgery performed at Mayo Clinic for Ebstein's anomaly, asking for growth charts when available, and giving patients a limited developmental screening questionnaire and quality of life questionnaire.  We seek to try to determine the specific age at which repair of Ebstein's anomaly may result in improved long-term outcomes beyond the operating room.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Any pediatric patient who has had their Ebstein’s anomaly operation performed at the Mayo Clinic in the era of the cone reconstruction (2007 until current).

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Jonathan Johnson, M.D.

Closed for enrollment

More information

Publications

Publications are currently not available

Study Results Summary

Not yet available

Supplemental Study Information

Not yet available

Additional contact information

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Phone: 800-664-4542 (toll-free)

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