Primary Tumor Research And Outcome Network (PTRON) Registry

Overview

About this study

The purpose of this registry is to collect clinical, diagnostic, and therapeutic data specific for primary spinal column tumor patients, and evaluate it to understand the predictive factors which influence survival, local recurrence, adverse events, perioperative morbidity, and health related quality of life.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria

  • Diagnosed with a primary tumor of the spine and receives medical and/or surgical treatment for the tumor
  • Willing and able to participate in the registry and able to attend follow-up visits, according to the investigator
  • Capable of understanding the content of the patient information and Informed Consent Form
  • Has agreed to participate in the registry by providing consent according to the applicable local law and the declaration of Helsinki

Exclusion Criteria

  • Diagnosed with a metastatic tumor of the spine
  • Diagnosed with a primary spinal cord tumor

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Michelle Clarke, M.D., Ph.D.

Open for enrollment

More information

Publications

Publications are currently not available

Additional contact information

Cancer-related trials contact form

Phone: 855-776-0015 (toll-free)

International patient clinical studies questions