A Study Of Polycystic Liver And Kidney Disease- Deployment Of Quality-of-life Tools To Practice

Overview

About this study

Statistical recording and characterization of a patient cohort with clinical or molecular diagnosis of polycystic liver or kidney disease (PLD/PKD). (2) Evaluation of patient reported outcomes in response to clinical interventions. Characterization of phenotypic severity, including liver volumes from available cross-sectional imaging (MRI/CT). Implementation of PLD-Q to evaluate the patient reported outcomes.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Patients receiving care at the Mayo Clinic for PLD with or without concomitant PKD.

  • Consent to participate in research.

  • Age over 18 years.

Exclusion Criteria:

  • <3 liver cysts in the available imaging.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 12/3/2025. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Marie Hogan, M.D., Ph.D.

Open for enrollment

More information

Publications

Publications are currently not available

Additional contact information

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Phone: 800-664-4542 (toll-free)

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