Idiopathic Inflammatory Central Nervous System Diseases Database and Biospecimen Repository

Overview

  • Study type

    Observational
  • Study IDs

  • Describes the nature of a clinical study. Types include:

    • Observational study — observes people and measures outcomes without affecting results.
    • Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
    • Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
  • Site IRB
    • Scottsdale/Phoenix, Arizona: 10-007099
    Sponsor Protocol Number: 10-007099

About this study

The purpose of this study is to learn more about the diagnosis, course, and treatment of inflammatory CNS diseases using clinical information (for example, symptoms, neurological examination abnormalities, MRI and other test results) together with laboratory tests on blood and cerebrospinal fluid (fluid which surrounds the spinal chord and brain). Plan to follow study participants for 3 years, periodically obtaining updated clinical information and blood samples during that time.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.

See eligibility criteria

Inclusion Criteria:       

  • IID of the central nervous system, examples include:
    • Neuromyelitis optica and NMOSD 
    • Optic neuritis 
    • Transverse myelitis 
    • Acute disseminated encephalomyelitis (ADEM) 
    • Paraneoplastic central nervous system disorders 
    • Multiple sclerosis  
    • Inflammatory central nervous system diseases not otherwise specified

Exclusion Criteria:      

  • Age < 12 years                    

Participating Mayo Clinic locations

Study statuses change often. Please contact us for help.

Mayo Clinic Location Status Contact

Scottsdale/Phoenix, Ariz.

Mayo Clinic principal investigator

Dean Wingerchuk, M.D.

Open for enrollment

Contact information:

Regina Becker

(480)342-6079

Becker.Regina@mayo.edu