the Mayo Cardiac Sarcoid Registry

Overview

  • Study type

    Observational
  • Study IDs

  • Describes the nature of a clinical study. Types include:

    • Observational study — observes people and measures outcomes without affecting results.
    • Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
    • Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
  • Site IRB
    • Rochester, Minnesota: 17-000976
    Sponsor Protocol Number: 17-000976

About this study

Aims, purpose, or objectives:

  1. Develop a retrospective registry of patients with cardiac sarcoidosis
  2. Develop a prospective registry of patients with cardiac sarcoidosis
  3. Understand the natural history of cardiac sarcoidosis through evaluation of outcomes of patients in the registry
  4. Determine risk factors for sarcoid involvement of the heart
  5. Evaluate outcomes of patients both treated and untreated with cardiac sarcoidosis
  6. Understand the complications of untreated and treated cardiac sarcoidosis

 

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. If you need assistance understanding the eligibility criteria, please contact the study team.

See eligibility criteria

Inclusion Criteria:

Adults evaluated in any Cardiology clinic with the diagnosis of probable or definite sarcoidosis. 

Exclusion Criteria: 

Patients declining to participate in the prospective registry.

 

Participating Mayo Clinic locations

Study statuses change often. Please contact us for help.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Lori Blauwet, M.D.

Open for enrollment

Contact information:

Lori Blauwet M.D.

(507)284-3687

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CLS-20308944

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