Qualitative Examination of the Pretransplant Experience of Lay Care Providers
Overview
Tab Title Description
Study type
ObservationalDescribes the nature of a clinical study. Types include:
- Observational study — observes people and measures outcomes without affecting results.
- Interventional study (clinical trial) — studies new tests, treatments, drugs, surgical procedures or devices.
- Medical records research — uses historical information collected from medical records of large groups of people to study how diseases progress and which treatments and surgeries work best.
Study IDs
Site IRB
- Rochester, Minnesota: 16-002814
Sponsor Protocol Number: 16-002814
About this study
The objective of this study is to explore the experiences of patients and their caregivers during Mayo Clinic’s pretransplant care program. The study will use semi-structured interviews to describe pretransplant experiences from the perspectives of the primary caregivers of patients waitlisted for transplant, including a focus on uncertainty. The sutdy will also aim to determine if the Mishel Uncertainty of Illness theory is an appropriate construct for pretransplant caregivers' experience with uncertainty or if this needs to be expanded to reflect the specific experience of caregivers caring for patients on the transplant waitlist.
Participation eligibility
Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.
Inclusion Criteria
Exclusion Criteria:
Participating Mayo Clinic locations
Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.
More information
Publications
Publications are currently not available