A Study of Reproductive Health Decision-Making and Outcomes in Patients with Von Willebrand Disease

Overview

About this study

The purpose of this study is to assess the decision-making process in women who have Von Willebrand disease,  regarding their attitudes and beliefs about contraception, pregnancy, and assisted reproduction and how these attitudes and beliefs affect choices and the management of bleeding risk during pregnancy.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Females
  • At least 18 years of age
  • “Index” patients with at least one documented visit to the Mayo Rochester Coagulation Clinic between 1/1/1990 and 12/31/2015
  • “Secondary” patients identified during verbal discussion with “Index” patients as family members of the Index patients
  • Has Von Willebrand Disease as diagnosed by laboratory workup, review of medical records, and/or discussion with “index” patients

Exclusion Criteria 

  • Males
  • Females age 17 or younger
  • Has no confirmed history of von Willebrand disease

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Ariela Marshall, M.D.

Closed for enrollment

More information

Publications

Publications are currently not available

Additional contact information

Non-cancer trials contact form

Phone: 800-664-4542 (toll-free)

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