Care Experience Program
The Care Experience Program in the Mayo Clinic Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery undertakes research that focuses on the entire health care journey, rather than a single disease, test or treatment. The program's mission is to honor the voices of patients and caregivers by developing, testing and implementing effective and transformative strategies that can optimize safety and outcomes for patients and their families.
The Care Experience Program's work focuses on research at the point of care, which is defined broadly to include anywhere that care is provided and received: the patient's home, clinic or hospital. Researchers work closely with clinical partners, patients and family caregivers to identify their preferences, needs and values. With these stakeholders, program investigators develop, test and implement strategies that improve experiences and outcomes.
Program objectives are to:
- Identify barriers and facilitators that affect receipt of high-quality, evidence-based care
- Test strategies to overcome barriers or replicate successes to improve care and patient outcomes
- Compare innovations and test the most acceptable, equitable and sustainable strategies to transform evidence into practice
Areas of focus
Research activities focus on:
- The identification and impact of variation in care delivery and how this variation affects care outcomes
- The development, testing and implementation of patient-reported outcome measures in research, in clinical practice and for performance measurement
- Testing and implementation of interventions to improve patient self-management of disease or chronic conditions
- Testing, comparing and implementing effective health communication strategies
- Testing and comparing innovations to improve family and caregiver support
- Using implementation science to compare approaches for assuring successful integration and sustainability of evidence-based practices
Methods used to achieve program objectives include:
- Surveys to understand the distribution of attitudes, beliefs and behavior
- Secondary analysis of data to assess changes or trends in patient or provider behavior or outcomes
- Randomized controlled or pragmatic trials to test efficacy of interventions to improve care and trials to compare the effectiveness of different interventions
- Statistical and psychometric methods to ensure validity and robustness of outcome measurement, and to maximize the potential impact that patient-reported outcomes can have on clinical care, including health care decision-making
- Qualitative methods — including video reflexive ethnography, photo elicitation, interviews, observations and focus groups — to understand patient or family caregiver experiences of care
The program is led by Joan M. Griffin, Ph.D., scientific director, and Andrea L. Cheville, M.D., medical director, who work together with a multidisciplinary team of social and behavioral scientists, clinicians, statisticians, programmers, and managers to conduct scientifically rigorous and methodologically diverse research that has clinical impact for patients, families and providers.