Access to Care: A Hospice Model of Care for the Homeless.
Mary Ann Bridget Kinney. Thesis. 2004.
Among Friends: Hospice Care for the Person with AIDS. Robert W.
Buckingham. Prometheus Books. 1992.
Approaching Death: Improving Care at the End of Life. Committee
on Care at the End of Life, Institute of Medicine. National Academy Press.
1997.
Care of the Dying: A Pathway to Excellence. Edited by John Ellershaw
and Susie Wilkinson. Oxford University Press. 2003.
Caregiving and Loss: Family Needs, Professional Responses. Edited
by Kenneth J. Doka and Joyce D. Davidson. Hospice Foundation of America. 2001.
Caregiving: Hospice-Proven Techniques for Healing Body and Soul.
Douglas C. Smith. Macmillan. 1997.
Caring for Dying People of Different Faiths. Julia Newberger. 3rd
edition. Radcliffe Medical Press. 2004.
Caring for Patients at the End of Life: Facing An Uncertain Future
Together. Timothy E. Quill. Oxford University Press. 2001.
Compassion in Dying: Stories of Dignity and Choice. Edited by Barbara
Coombs Lee. NewSage Press. 2003.
The Complete Hospice Guide. Robert W. Buckingham. Harper and Row,
Publishers. 1983.
Coping Skills Therapy for Managing Chronic and Terminal Illness.
Kenneth Sharoff. Springer. 2004.
Crossing Over: Narratives of Palliative Care. David Barnard. Oxford
University Press. 2000.
Cultural Changes in Attitudes Toward Death, Dying, Bereavement.
Bert Hayslip, Jr. and Cynthia A. Peveto. Springer. 2005.
Dying, Death, and Bereavement: A Challenge for Living. Edited
by Inge Corless, Barbara B. Germino, and Mary A. Pittman. 2nd edition.
Springer. 2003.
The Dying Soul: Spiritual Care at the End of Life. Mark Cobb. Open
University Press. 2001.
End of Life in Care Homes: A Palliative Care Approach. Edited by
Jeanne Samson Katz and Sheila Peace. Oxford University Press. 2003.
End of Life Nursing Care. Belinda Poor and Gail P. Poirrier. Jones
and Bartett. 2001.
Ethical Dilemmas at the End of Life. Edited by Kenneth J.
Doka, Bruce Jennings, and Charles A. Corr. Hospice Foundation of
America. Living with Grief series. 2005.
Euthanasia Is Not the Answer: A Hospice Physician's View. David
Cundiff. Humana Press. 1992.
Facing Death. Edited by Howard M. Spiro, et.al. Yale University Press. 1996.
Geriatric Palliative Care. Edited by R. Sean Morrison and Diane
E. Meier. Oxford University Press. 2003.
Handbook of Hospice Care. Robert W. Buckingham. Prometheus Books.
1996.
Handbook of Hospice Policies and Procedures. Marilyn Harris, Elissa
Della Monica, and Pamela Boyd. Aspen. 1999.
Hospice and Palliative Care: Concepts and Practice. Second edition.
Walter B. Forman, Judith A. Kitzes, Robert P. Anderson. and Denice C.
Sheehan . Jones and Bartlett Publishers. 2003.
Hospice and Palliative Care Handbook: Quality, Compliance, and
Reimbursement. Tina M. Marrelli. 2nd edition. Elsevier
Mosby. 2005.
Hospice and Palliative Nursing: Scope and Standards of Practice. Hospice and Palliative Nurses Association and American Nurses Association. 2007.
Hospice Care for Children. Edited by Ann Armstrong-Dailey and Sarah
Zarbock Goltzer. Oxford University Press. 1993.
Hospice Care for Patients with Advanced Progressive Dementia. Springer. 1998.
Hospice Care on the International Scene. Dame Cicely Saunders and
Robert Kastenbaum, editors. Springer Publishing Company. 1997.
Hospice Care: Principles and Practices. Edited by Charles A. Corr
and Donna M. Corr. Springer Publishing Company, Inc. 1983.
Hospice Care Systems: Structure, Process, Costs, and Outcome. Vincent
Mor with Susan Masterson-Allen. Springer Publishing Company. 1987.
The Hospice Choice: In Pursuit of a Peaceful Death. Fireside. 1998.
Hospice Concepts: A Guide to Palliative Care in Terminal Illness.
Shirley Ann Smith. Research Press. 2000.
The Hospice Movement: A Better Way of Caring for the Dying. Revised
edition. Sandol Stoddard. Vintage Books/Random House. 1992.
The Hospice Movement: Easing Death's Pains. Cathy Siebold. Twayne
Publishers. 1992.
Hospice Standards Manual. Joint Commission on Accreditation of
Hospitals. 1986.
Hospice: The Living Idea. Edited by Cicely Saunders, Dorothy H.
Summers, and Neville Teller. W.B. Saunders Company. 1981.
Hospice: The Nursing Perspective. Sylvia H. Schraff, Coordinating
Editor. Publication Number: 20-1967. National League for Nursing. 1984.
A Hospice Handbook: A New Way to Care for the Dying. Michael P.
Hamilton and Helen F. Reid, editors. William B. Eerdmans. 1980.
Hospital-Based Palliative Care Teams: The Hospital-Hospice Interface.
R.J. Dunlop and J.M. Hockley. Oxford University Press. 1998.
Hospital-Hospice Management Models: Integration and Collaboration.
Edited by Dan Lerman and Claire Tehan. American Hospital Association. 1995.
I'm Here to Help: A Guide for Caregivers, Hospice Workers, and Volunteers.
M. Catherine Ray. Bantam Books. 1997.
Improving Care for the End of Life: A Sourcebook for Health Care Managers
and Clinicians. Joanne Lynn, Janice Lynch Schuster, and Andrea Kabcenell.
Oxford University Press. 2000.
Improving Nursing Home Care of the Dying: A Training Manual for Nursing
Home Staff. Martha L. Henderson, Laura C. Hanson, and Kimberly S.
Reynolds. Springer Publishing Company. 2003.
Living with Death and Dying: How to Communicate with the Terminally
Ill. Elizabeth Kubler-Ross. Touchstone. 1997.
Living with Dying: A Handbook for End-of-Life Healthcare Practitioners.
Edited by Joan Berzoff and Phyllis R. Silverman. Columbia University
Press. 2004.
Matters of Life and Death: Finding the Words to Say Goodbye. Carol
Wogrin. Broadway Books. 2001.
The Nature of Suffering and the Goals of Medicine. Eric J. Cassell.
2nd edition. Oxford University Press. 2004.
The 1989 Guide to The Nation's Hospices. National Hospice Organization,
Inc. 1989.
Older Adults' View on Death. Victor G. Cicirelli. Springer. 2002.
Outpatient Case Management: Strategies for a New Reality. Edited
by Michelle Regan Donovan and Theodore A. Matson. American Hospital Association
Publishing. 1994.
Palliative Care Nursing: Quality Care to the End of Life. Edited
by Marianne LaPorte Matzo and Deborah Witt Sherman. Springer. 2001.
Palliative Practices: An Interdisciplinary Approach.
Kim K. Kuebler, Mellar P. Davis, and Crystal Dea Moore. Elsevier
Mosby. 2005.
Physician's Guide to End-of-Life Care. Edited by Lois Snyder and
Timothy E. Quill. American College of Physicians--American Society of
Internal Medicine. 2001.
Providing a Palliative Care Service: Towards an Evidence Base.
Nick Bosanquet and Chris Salisbury. Oxford University Press. 1999.
Psychosocial Issues in Palliative Care. Edited by Mari Lloyd-Williams.
Oxford University Press. 2003.
Recognizing Spiritual Needs in People Who Are Dying. Rachel Stanworth.
Oxford University Press. 2004.
Researching Palliative Care. Edited by David Field, David Clark,
Jessica Corner, and Carol Davis. Open University Press. 2001.
Scope and Standards of Hospice and Palliative Nursing Practice. Hospice
and Palliative Nurses Association, American Nurses Association. American
Nurses Publishing.
2002.
Terminal Illness: A Guide to Nursing Care. Charles Kemp. Lippincott.
1999.
To Listen, To Comfort, to Care: Reflections and Death and Dying.
Delmar Publishers. 1994.
Transitus: A Blessed Death in the Modern World. Therese Schroeder-Sheker.
St. Dunstan's Press. 2001.
20 Common Problems in End-of-Life Care. Edited by Barry M. Kinzbrunner,
Neal J. Weinreb, and Joel S. Policzer. McGraw-Hill. 2002.
Videos
Caregiving and Loss: Family Needs, Professional Losses. With:
Cokie Roberts (Moderator), Kenneth Doka, Bernice Harper, Carol Levine,
Susan Reinhard, and Myrl Weinberg. A 142-minute video in two parts. Hospice
Foundation of America. 2001.
Synopsis: Identifies the needs of family caregivers and
explores how professionals can help; discusses the dynamics of caregiving
- what it is, who provides it, where it happens; outlines government
and workplace policies that effect caregiving; details programs and
practices that make a difference for caregivers; documents caregiving
experiences and the support professionals can provide.
Embracing Butterflies: Reflections on Living and the End-of-Life Experience.
[1 video with guide]. St. Paul, MN: Sunmark Productions, 2003. 32 minutes.
Synopsis: This video consists of nature scenes accompanied
by quotes and reflections that are designed to encourage persons faced
with end-of life issues to live their limited days to their fullest,
to reminisce about past moments that have given life its meaning, and
to reflect on that which connects them to something larger than themselves.
Five Wishes. A 25-minute video program. Aging with Dignity. 2000.
Synopsis: A video about planning for and discussing care
at the end of life.
Forever Young. With C. Everett Koop. A 60-minute video program
with a guide. PBS Video. 1991.
Synopsis: How innovative approaches to health issues
for the elderly, such as hospice programs, are finding new solutions
to continuing problems.
The Heart of the New Age Hospice. A 28-minute video program. Carle
Medical Communications. 1987.
Synopsis: The full spectrum of hospice services--home
care, inpatient care, bereavement; offers a model to follow in treating
terminally ill patients; interviews with a full range of professionals--physician,
nurse, social worker, chaplain, home health aide, volunteers.
Living with Grief: Ethical Dilemmas at the End of Life. [2 videos].
Washington, DC: Hospice Foundation of America, 2005. 147 minutes. With:
Michael Putney (Moderator), Kenneth J. Doka, William H. Colby, Charles
A. Corr, Richard B. Fife, Jack Gordon, Bernice Harper, Bruce Jennings,
Bill Lamers, and JoAnne Reifsnyder.
Note: 4/20/2005 presentation
Synopsis: Explores the ethical and legal framework that we as a nation
have come to agree on, recognizing, as the Schiavo case demonstrates,
that not everyone agrees with these principles; explores the disconnect
between this framework and putting it into practice; discusses disclosure,
communication, goals of care, advanced planning, and surrogate decision
making; discusses artificial hydration and nutrition; covers physician
assisted suicide, ethics and policy, implications for survivors who
are part of the ethical decisions, and the impact on professionals touched
by ethical dilemmas.
Letting Go. . . A Hospice Journey. A 90-minute video program.
Films for the Humanities and Sciences. 1996.
Synopsis: Examines how hospice care helps patients and
their families cope with fear and pain in the final stages of life;
discusses the decision-making process of the doctors, nurses, chaplains,
social workers, and volunteers involved in the hospice.
Mayo Hospice Program. A 120-minute video program with guide. Mayo
Clinic. 1994. With Margaret Gillard, RN; Anita Haugland, RN; and Lynn
Borkenhagen, RN. [VC 2005]
Synopsis: Identifies the philosophy of the Mayo Hospice
Program; lists the services available through the Mayo Hospice Program;
describes hospice referral process.
On Our Own Terms: Moyers on Dying. [4 videos]. Princeton, NJ:
Films for the Humanities & Sciences, 2000. 360 minutes. With: Bill
Moyers.
Synopsis: Tape 1) Living with Dying. Describes the search
for new ways of thinking--and talking--about dying. Examines the end
of life with honesty, courage, and even humor, demonstrating that dying
can be an incredibly rich experience for both the terminally ill and
their loved ones. Tape 2) A Different Kind of Care. Presents the important
strides being made in the area of palliative care at pioneering institutions
such as New York's Mt. Sinai Hospital and Memorial Sloan-Kettering Cancer
Center. Tape 3) A Death of One's Own. Documents the complexities underlying
the many choices at the end of life, including the bitter debate over
physician-assisted suicide. Discusses some of the hardest decisions,
including how to pay for care, what constitutes humane treatment, and
how to balance dying and dignity. Tape 4) A Time to Change. Introduces
crusading medical professionals--including staff members of the Balm
of Gilead Project in Birmingham, Alabama--who have dedicated themselves
to improving end-of-life care by changing America's overburdened health
system.
The Pitch of Grief: A Program About Loss, Grief. . . and Recovery.
A 30-minute video program. Fanlight Productions in conjunction with Newton
Cable Television Foundation and Eric Stange. 1985.
Synopsis: Winner of the National Hospice Organization's
Film of the Year Award. The emotional process of grieving; intimate
interviews with four men and women, young and old, who have lost loved
ones and lived through the aftermath; a helpful exploration of pain
and loss, not only for the bereaved person, but for family, friends,
and health care workers who are often looked to for support and understanding;
a program for all who will someday face the loss of a loved one.
Understanding The Maze of Medicare. A 45-minute video program
with a guide. SCS Productions in cooperation with the Social Security
Administration. 1990.
Synopsis: Hospital insurance [including home health care
and hospice care]; medical insurance [including home health visits];
what isn't covered.
Winning Ventures: There's No Place Like Home Care. With C. Grasca,
T. Louden, E. O'Neill, M. Popper, and D. Tanner. A 130-minute video teleconference
with a guide. American Hospital Association. 1986.
Synopsis: Diversification options; payment; staffing;
regulatory and profit potential characteristics; future trends in home
care; five market segments--Medicare skilled care, private duty nursing
demand, durable medical equipment, high tech/outpatient pharmacy, and
self-care.
With Eyes Open: Coping with Death. [4 videos]. Princeton, NJ:
Films for the Humanities & Sciences, 2000. 104 minutes (26 minutes
each). With: Ray Suarez.
Contents:
Part 1: Grief and Healing.
Part 2: Difficult Decisions, When a Loved One Approaches Death.
Part 3: Caregiving.
Part 4: Beyond Life and Death.
Synopsis: Ray Suarez invites viewers to look at death with their eyes
open to the end, so that they may more fully live in the natural light
of the inevitability of dying. Topics such as grief, medical decision
making, caregiving, and life after death are discussed in intimate groups.
Simple exercises to assist in the healing process are included.
The list of resources on this page is not intended to be complete or
comprehensive. The selected resources included are representative of the
subject area covered and are an excellent starting point for further research.
Additional print and electronic information can be found by conducting
your own literature search, consulting other library collections, or contacting
a professional librarian/informationist for assistance. Please check with
your local library to determine availability of these resources and local
library access to national interlibrary loan networks for resources not
owned locally. The list of resources is updated regularly as new resources
are identified by the Mayo Clinic Libraries, Mayo Clinic College of Medicine.
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