Approaching Death: Improving Care at the End of Life. Committe
on Care at the End of Life, Institute of Medicine. National Academy Press.
1997.
As I Lay Dying: Meditations Upon Returning. Richard John Neuhas.
Basic Books. 2002.
Beyond Knowing: Mysteries and Messages of Death and Life from a Forensic Pathologist. Janis Amatuzio. New World Library. 2006.
Care of the Dying: A Pathway to Excellence. Edited by John Ellershaw
and Susie Wilkinson. Oxford University Press. 2003.
Caring for Patients at the End of Life: Facing An Uncertain Future
Together. Timothy E. Quill. Oxford University Press. 2001.
Caregiving: Hospice-Proven Techniques for Healing Body and Soul.
Douglas C. Smith. Macmillan. 1997.
Caregiving and Loss: Family Needs, Professional Responses. Edited
by Kenneth J. Doka and Joyce D. Davidson. Hospice Foundation of America. 2001.
Caring for Dying People of Different Faiths. Julia Newberger.
3rd edition. Radcliffe Medical Press. 2004.
A Challenge for Living: Dying, Death, and Bereavement. Edited
by Inge B. Corless, Barbara B. Germino, and Mary Pittman. Jones and Bartlett.
1995.
The Child and Family Facing Life-Threatening Illness : A Tribute to
Eugenia Waechter. Edited by Tamar Krulik, Bonnie Holaday, and Ida
M. Martinson. Lippincott. 1987.
A Clinician's Guide to Palliative Care. George J. Taylor and Jerome
E. Kurent. Blackwell. 2003.
Compassion in Dying: Stories of Dignity and Choice. Edited by
Barbara Coombs Lee. NewSage Press. 2003.
Coping Skills Therapy for Managing Chronic and Terminal Illness.
Kenneth Sharoff. Springer. 2004.
Conversations in Palliative Care. Edited by Joan T. Panke and Patrick Coyne. Hospice and Palliative Nurses Association. 2006.
Cry Until You Laugh: A Practical Approach to Grief and Death.
Richard J. Obershaw. Grief Center. 1992.
Cultural Changes in Attitudes Toward Death, Dying, Bereavement.
Bert Hayslip, Jr. and Cynthia A. Peveto. Springer. 2005.
Death Without Denial, Grief Without Apology: A Guide for Facing Death
and Loss. Barbara K. Roberts. NewSage Press. 2002.
Describing Death in America: What We Need to Know. National Cancer
Policy Board and Division of Earth and Life Studies, National Institutes
of Medicine. Edited by Kathleen M. Foley, June R. Lunney, Thomas J. Smith,
and Helen Gelband. The National Academies Press. 2003.
Dignity at the End of Life [Special thematic issue]. Journal
of Palliative Care. Volume 20, #3, Autumn 2004. [Journal
issue]
Don't Let Death Ruin Your Life: A Practical Guide to Reclaiming Happiness
After the Death of a Loved One. Jill Brooke. Plume Book. 2002.
Dying, Death, and Bereavement: A Challenge for Living. Edited
by Inge Corless, Barbara B. Germino, and Mary A. Pittman. 2nd edition.
Springer. 2003.
The Dying Process: Patients' Experiences of Palliative Care. Julia
Lawton. Routledge. 2000.
The Dying Soul: Spiritual Care at the End of Life. Mark Cobb.
Open University Press. 2001.
End of life: A Nurse's Guide to Compassionate Care. Lippincott Williams & Wilkins.
2007.
End of Life Care: Clinical Practice Guidelines. Kim K. Kuebler,
Patricia H. Berry, and Debra E. Heidrich. W. B. Saunders. 2002.
End-of-Life Communication in the ICU: A Global Perspective. Edited by David W. Crippen. Springer. 2008.
End of Life in Care Homes: A Palliative Care Approach. Edited
by Jeanne Samson Katz and Sheila Peace. Oxford University Press. 2003.
End of Life Issues: Interdisciplinary and Multidimensional Perspectives.
Edited by Brian de Vries. Springer. 1999.
Empty Arms : A Guide to Help Parents and Loved Ones Cope With Miscarriage,
Stillbirth and Neonatal Death. Sherokee Ilse and edited by Arlene
Appelbaum. S.L. Ilse, 1982.
Empty Cradle, Broken Heart: Surviving the Death of Your Baby.
Deborah L. Davis. Fulcrum Publishing. 1996.
End of Life Nursing Care. Belinda Poor and Gail P. Poirrier. Jones
and Bartlett. 2001.
Ethical Dilemmas at the End of Life. Edited by Kenneth J.
Doka, Bruce Jennings, and Charles A. Corr. Hospice Foundation of
America. Living with Grief series. 2005.
Euthanasia and the Right to Die: A Comparative View. Jennifer
M. Scherer and Rita J. Simon. Rowman & Littlefield Publishers. 1999.
Final Conversations: Helping the Living and the Dying Talk to Each Other. Maureen P. Keeley and Julie M. Yingling. VanderWyk & Burnham. 2007.
Forever Ours: Real Stories of Immortality and Living from a
Forensic Pathologist. Janis Amatuzio. New World Library. 2004.
Geriatric Palliative Care. Edited by R. Sean Morrison and Diane
E. Meier. Oxford University Press. 2003.
A Good Death: Challenges, Choices, and Care Options. Charles Meyer.
Twenty-Third Publications. 1998.
Handbook of Mortals: Guidance for People Facing Serious Illness.
Joanne Lynn, Joan Harrold and the Center to Improve Care of the Dying,
George Washington University. Oxford University Press. 1999.
Healing Conversations: What to Say When You Don't Know What to Say.
Nance Guilmartin. Jossey-Bass. 2002.
Healing the Dying. Melodie Olson. Delmar. 2001.
How Do We Tell the Children?: A Step-by-Step Guide for Helping Children
Two to Teen Cope When Someone Dies. Dan Schaefer and Christine Lyons.
Newmarket Press. 2001.
Improving Nursing Home Care of the Dying: A Training Manual for Nursing
Home Staff. Martha L. Henderson, Laura C. Hanson, and Kimberly S.
Reynolds. Springer Publishing Company. 2003.
Innovations in End-of-Life Care: Practical Strategies & International
Perspectives. Edited by Mildred Z. Solomon, Anna L. Romer, Karen S.
Heller, and David E. Weissman. Mary Ann Liebert. 2001.
Living with Death and Dying: How to Communicate with the Terminally
Ill. Elisabeth Kubler-Ross. Touchstone. 1997.
Living with Dying: A Handbook for End-of-Life Healthcare Practitioners.
Edited by Joan Berzoff and Phyllis R. Silverman. Columbia University
Press. 2004.
Matters of Life and Death: Finding the Words to Say Goodbye. Carol
Wogrin. Broadway Books. 2001.
Meaning in Suffering : Caring Practices in the Health Professions. Edited by Nancy E. Johnston and Alwilda Scholler-Jaquish. University of Wisconsin Press. 2007.
Miscarriage: A Shattered Dream. Sherokee Ilse and Linda Hammer
Burns. Wintergreen Press. 1985.
Methods in Medical Ethics. Edited by Jeremy Sugarman and Daniel
P. Sulmasy. Georgetown University Press. 2001.
Specific Chapter: 14) Research in Medical Ethics: Physician-Assisted
Suicide and Euthanasia
Miscarriage: Women's Experiences and Needs. Christine Moulder.
Routledge. 2001.
The Nature of Suffering and the Goals of Medicine. Eric J. Cassell.
2nd edition. Oxford University Press. 2004.
Nursing Support for Families of Dying Patients. Rosemary McIntyre.
Whurr Publishers. 2002.
Older Adults' View on Death. Victor G. Cicirelli. Springer. 2002.
Palliative & End-of-Life Care : Clinical Practice Guidelines. Kim K. Kuebler, Debra E. Heidrich and Peg Esper. Saunders/Elsevier. 2007.
Palliative Care Nursing: Quality Care to the End of Life. Edited
by Marianne LaPorte Matzo and Deborah Witt Sherman. Springer. 2001.
Palliative Care Resuscitation. Madeline Bass. Wiley. 2006.
Palliative Practices: An Interdisciplinary Approach.
Kim K. Kuebler, Mellar P. Davis, and Crystal Dea Moore. Elsevier
Mosby. 2005.
Perspectives on Death and Dying. Gere B. Fulton and Eileen K.
Metress. Jones and Bartlett. 1995.
Physician-Assisted Suicide: What Are the Issues? Edited by Loretta
M. Kopelman and Kenneth A. De Ville. Kluwer Academic Publishers. 2001.
Physician's Guide to End-of-Life Care. Edited by Lois Snyder and
Timothy E. Quill. American College of Physicians--American Society of
Internal Medicine. 2001.
The Psychology of Death. Robert Kastenbaum. Springer. 2000.
Psychosocial Issues in Palliative Care. Edited by Mari Lloyd-Williams.
Oxford University Press. 2003.
Recognizing Spiritual Needs in People Who Are Dying. Rachel Stanworth.
Oxford University Press. 2004.
Regulating How We Die: The Ethical, Medical, and Legal Issues Surrounding
Physician-Assisted Suicide. Edited by Linda L. Emanuel. Harvard University
Press. 1998.
Researching Palliative Care. Edited by David Field, David Clark,
Jessica Corner, and Carol Davis. Open University Press. 2001.
The Right to Die Debate: A Documentary History. Edited by Marjorie
Zucker. Greenwood Press. 1999.
The Right to Die with Dignity: An Argument in Ethics, Medicine, and
Law. Raphael Cohen-Almagor. Rutgers University Press. 2001.
Sacred Dying: Creating Rituals for Embracing the End of Life.
Megory Anderson. Prima Publishing. 2001.
Stepping into Palliative Care. Edited by Jo Cooper. Radcliffe. 2006.
Sudden Death in Childhood: Support for the Bereaved Family. Ann
Dent and Alison Stewart. Butterworth Heinemann. 2004.
Suicide and Euthanasia in Older Adults: A Transcultural Journey.
Edited by Diego De Leo. Hagrefe & Huber Publishers. 2001.
Talking About Death Won't Kill You. Edited by Virginia Morris.
Workman Publishing. 2001.
And a Time to Die: How American Hospitals Shape the End of Life. Sharon R. Kaufman. Scribner. 2005.
To Comfort Always: A Nurse's Guide to End of Life Care. Linda
Norlander. American Nurses' Association. 2001.
Transitus: A Blessed Death in the Modern World. Therese Schroeder-Sheker.
St. Dunstan's Press. 2001.
Trying Again: A Guide to Pregnancy After Miscarriage, Stillbirth,
and Infant Loss. Ann Douglas and John R. Sussman. Taylor Trade Publishing.
2000.
20 Common Problems in End-of-Life Care. Edited by Barry M. Kinzbrunner,
Neal J. Weinreb, and Joel S. Policzer. McGraw-Hill. 2002.
Tuesdays with Morrie: An Old Man, a Young Man, and Life's Great Lesson.
Mitch Albom. Broadway Books. 2002.
When a Baby Dies: The Experience of Late Miscarriage, Stillbirth and
Neonatal Death. Nancy Kohner and Aliz Henley. Routledge. 2001.
When Children Die: Improving Palliative and End-of-Life Care for Children
and Their Families. Institute of Medicine of the National Academies.
The National Academies Press. 2003.
When Parents Die: Learning to Live With the Loss of a Parent.
Rebecca Abrams. Routledge. 1999.
When Professionals Weep: Emotional and Countertransference Responses in End-of-Life Care. Edited by Renee S. Katz & Therese A. Johnson. Routledge. 2006.
Withholding and Withdrawing Life-Prolonging Medical Treatment: Guidance
for Decision-Making. British Medical Association. BMJ Books. 2001.
Videos
Before I Die: Medical Care and Personal Choices. [1 video]. Alexandria,
VA: PBS Home Video, 1997.
Synopsis: Moderator Arthur Miller presents hypothetical
scenarios that force panelists to role-play in situations where the
right choices, both professional and personal, are not always evident.
These scenarios focus on how three terminal patients and their families
cope with the patients' illnesses. The panel consists of physicians,
nurses, chaplains, lawyers, and social services workers.
Caregiving and Loss: Family Needs, Professional Losses. With:
Cokie Roberts (Moderator), Kenneth Doka, Bernice Harper, Carol Levine,
Susan Reinhard, and Myrl Weinberg. A 142-minute video in two parts. Hospice
Foundation of America. 2001.
Synopsis: Identifies the needs of family caregivers and
explores how professionals can help; discusses the dynamics of caregiving
- what it is, who provides it, where it happens; outlines government
and workplace policies that effect caregiving; details programs and
practices that make a difference for caregivers; documents caregiving
experiences and the support professionals can provide.
Children Die, Too. [1 video]. Princeton, NJ: Films for the Humanities
& Sciences, 1990. 26 minutes.
Synopsis: Art therapy classes for children; sudden death
of a child; childhood diseases; birth defects; miscarriages; stillborns.
A couple who lost their three-year-old, a teenager whose sister dies
from leukemia, and others who have lived through the death of a child
talk about their experiences, and specialists in dealing with childhood
terminal disease and death talk about how people can help each other
and how surviving children can be helped to express grief.
Dealing with Death and Dying. [1 video]. Springhouse, PA: Springhouse
Corporation, 1991. 49 minutes.
Synopsis: Helping the patient maintain his sense of dignity;
how to give the patient a sense of control; responding to the patient's
spiritual needs; encouraging the patient and his family to share their
feelings; how to help the patient work through his fears; recognizing
and dealing with unique coping mechanisms; providing the patient with
special attention despite a hectic schedule;interacting with doctors;
what to do for the family immediately after the patient dies; how to
comfort the family member whoarrived 'too late'; coping with your own
feelings of failure and frustration; how to reassure the patient who
asks Why me?
The Death of Nancy Cruzan. [1 video]. Alexandria, VA: PBS Video,
1992. 88 minutes.
Synopsis: A documentary from Nancy's family's perspective
of their eight-year struggle to withdraw food and fluids from her; include
reminiscences of Nancy prior to her accident, the progress of judicial
decisions followed, and the decision-making roles of the hospital administration,
nurses, and lawyers. The public debate centering around the withdrawal
of Nancy's nutrition is noted.
Dying. [1 video] Boston, MA: WGBH. 120 minutes.
Synopsis: Death, as viewed from a variety of perspectives.
The Dynamics of Loss. [1 video]. Carrollton, TX: HSTN, 2001. 30
minutes. With: Maureen V. Runyon.
Synopsis: This program discusses loss through expected
or unexpected death and the unique circumstances associated with each;
stages of grief; and strategies to assess and assist patients and their
families in the grieving and healing process.
Embracing Butterflies: Reflections on Living and the End-of-Life Experience.
[1 video with guide]. St. Paul, MN: Sunmark Productions, 2003. 32 minutes.
Synopsis: This video consists of nature scenes accompanied
by quotes and reflections that are designed to encourage persons faced
with end-of life issues to live their limited days to their fullest,
to reminisce about past moments that have given life its meaning, and
to reflect on that which connects them to something larger than themselves.
Facing Death. [4 videos with a guide]. Austin, TX. : Family Experiences
Production, Inc., 1997. 15 minutes each tape.
Synopsis: Part 1) Providing physical, emotional and spiritual
comfort to loved ones: pain management; stages of dying; spiritual comfort;
caring for the patient; disfigurements; going inward; taking a break;
humor; therapy and counseling. Part 2) Practical planning and legal
issues: wills; sources of help in writing a will; living wills and advance
directives; funeral arrangements; organ donation; donating your body
to science; bills and insurance. Part 3) Understanding end-of-life patient
needs; focuses on a range of intense concerns and emotions including:
honesty, denial, anger, hope and miracles, making preparations, and
seeking the important. Part 4) The gift of being there; ways of being
there, being there with grace, being there while you can, being there
for the comatose patient, being there--a family issue.
A Fate Worse Than Death. [1 video]. Boston, MA: Fanlight Productions,
1991. 58 minutes.
Synopsis: Family members, nurses, doctors, ethicists
and attorneys comment on the complex ethical, moral, and legal dilemmas
surrounding decisions re: withholding/withdrawing artificial life support;
discussion on advance directives, living wills, durable power of attorney.
Five Wishes. [1 video]. Tallahassee, FL: Aging with Dignity, 2000.
25 minutes.
Synopsis: A video about planning for and discussing care
at the end of life.
The Joys and Surprises of Telling Your Life Story. [1 video with
guide]. Madison, WI: Bi-Folkal Productions, 2002. 42 minutes.
Synopsis: Includes techniques for telling your life story,
and introduces several people who discuss recording their memoirs.
Life Support Decisons: A Guide to Self-Determination. [1 guide].
Boston, MA : Fanlight Productions, 1996. 60 minutes.
Synopsis: Discusses the rights and options of the elderly
regarding life-support technologies and end of life care and decision
making; discusses preparing advance directives, the realities of the
healthcare system, legal considerations and requirements, cultural perspectives
on death and dying, living wills and durable powers of attorney, the
duties of surrogate decision makers, and the importance of values communication.
Living with Grief: Coping with Public Tragedy. [1 video]. Location
unknown: Hospice Foundation of America, 2003. 143 minutes. With: Cokie
Roberts (Moderator), Kenneth J. Doka, LaVone Hazell, Marcia Lattanzi-Licht,
Nadine Reimer Penner, and Marlene A. Young.
Note: 4/30/2003 broadcast
Synopsis: This program looks at factors that define a public tragedy
and offers insight and advice to organizations and professionals as
they support their communities and help those coping with loss. The
effects of tragedies such as 9-11, Hurricane Andrew, Oklahoma City and
other significant national events are examined.
Living with Grief: Ethical Dilemmas at the End of Life. [2 videos].
Washington, DC: Hospice Foundation of America, 2005. 147 minutes. With:
Michael Putney (Moderator), Kenneth J. Doka, William H. Colby, Charles
A. Corr, Richard B. Fife, Jack Gordon, Bernice Harper, Bruce Jennings,
Bill Lamers, and JoAnne Reifsnyder.
Note: 4/20/2005 presentation
Synopsis: Explores the ethical and legal framework that we as a nation
have come to agree on, recognizing, as the Schiavo case demonstrates,
that not everyone agrees with these principles; explores the disconnect
between this framework and putting it into practice; discusses disclosure,
communication, goals of care, advanced planning, and surrogate decision
making; discusses artificial hydration and nutrition; covers physician
assisted suicide, ethics and policy, implications for survivors who
are part of the ethical decisions, and the impact on professionals touched
by ethical dilemmas.
On Our Own Terms: Moyers on Dying. [4 videos]. Princeton, NJ :
Films for the Humanities & Sciences, 2000. 360 minutes total.
Synopsis: Tape 1) Living with Dying. Describes the search
for new ways of thinking--and talking--about dying. Examines the end
of life with honesty, courage, and even humor, demonstrating that dying
can be an incredibly rich experience for both the terminally ill and
their loved ones. Tape 2) A Different Kind of Care. Presents the important
strides being made in the area of palliative care at pioneering institutions
such as New York's Mt. Sinai Hospital and Memorial Sloan-Kettering Cancer
Center. Tape 3) A Death of One's Own. Documents the complexities underlying
the many choices at the end of life, including the bitter debate over
physician-assisted suicide. Discusses some of the hardest decisions,
including how to pay for care, what constitutes humane treatment, and
how to balance dying and dignity. Tape 4) A Time to Change. Introduces
crusading medical professionals--including staff members of the Balm
of Gilead Project in Birmingham, Alabama--who have dedicated themselves
to improving end-of-life care by changing America's overburdened health
system.
Touch of Mercy. [1 video]. Bethesda, MD: Discovery Communications,
2000. 52 minutes.
Synopsis: Oncology nurses at Johns Hopkins Hospital in
Baltimore are the focus of this episode of the series, Nurses. As these
nurses work with cancer patients, they provide various treatments, pain
management, family therapy, and emotional support as well as helping
people "die well." The nurses work with patients with leukemia,
bone cancer, testicular cancer, breast cancer and lung cancer in the
hospital, outpatient treatments, and hospice care. They discuss the
satisfaction they find in working with these patients as well as their
frustrations working with some of the families, their relationships
with patients that they see daily, and how they deal with the inevitable
death of some of these patients.
The Way We Die: Listening to the Terminally Ill. [1 video]. Boston,
MA: Fanlight Productions, 1995. 24 minutes.
Synopsis: Through interviews with doctors, patients,
and family member and through filmed interactions between medical personnel
and their terminally ill patients, this video addresses a pervasive
problem in healthcare today: the excessive and restrictive focus on
treating diseases, not people. It makes the case that physicians and
nurses must be trained to treat the whole patient, and encourages health
care professionals to work with their patients to devise treatment plans
in accordance with their needs, values, and wishes.
What Do I Tell My Children? [1 video]. Newton, MA: Lifecycle Productions,
Incorporated,, 1989. 30 minutes.
Synopsis: How to help a child cope with the death of
a loved one; parents who are coping with a loss; different kinds of
bereavement--sibling, parent, and grandparent; the need for sensitivity
to a family's grief.
With Eyes Open: Coping with Death. [4 videos]. Princeton, NJ:
Films for the Humanities & Sciences, 2000. 104 minutes (26 minutes
each). With: Ray Suarez.
Part 1: Grief and Healing.
Part 2: Difficult Decisions, When a Loved One Approaches Death.
Part 3: Caregiving.
Part 4: Beyond Life and Death.
Synopsis: Ray Suarez invites viewers to look at death with their eyes
open to the end, so that they may more fully live in the natural light
of the inevitability of dying. Topics such as grief, medical decision
making, caregiving, and life after death are discussed in intimate groups.
Simple exercises to assist in the healing process are included.
The list of resources on this page is not intended to be complete or
comprehensive. The selected resources included are representative of the
subject area covered and are an excellent starting point for further research.
Additional print and electronic information can be found by conducting
your own literature search, consulting other library collections, or contacting
a professional librarian/informationist for assistance. Please check with
your local library to determine availability of these resources and local
library access to national interlibrary loan networks for resources not
owned locally. The list of resources is updated regularly as new resources
are identified by the Mayo Clinic Libraries, Mayo Clinic College of Medicine.
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