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Recognition and Treatment of Marfan Syndrome and Related Disorders ~ A Unique Perspective from Patients, Families, and Experts

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Program Schedule

August 8, 2009

Sessions I and II will be open to the 25th National Marfan Foundation Annual Conference attendees as well as CME attendees and will include both patients and physicians. Session III is open only to CME attendees.

7:30 a.m.

Registration and Continental Breakfast

SESSION I:
Moderator: Naser M. Ammash, M.D., Dusica Babovic- Vuksanovic, M.D.

8:30 a.m.

Welcome and Introductions
Juan Bowen, M.D.

8:35 a.m.

Is it Marfan Syndrome or Something Else?
Dianna M. Milewicz, M.D., PhD

9:05 a.m.

Genetic Testing is it Right for me?
Peter H. Byers, M.D.                                                       

9:35 a.m.

Orthopedic Challenges in Marfan Syndrome and Related Disorders
Paul D. Sponseller, M.D.

10:05 a.m.

Q&A Session

10:20 a.m.

 Break

SESSION II:
Moderator: Juan M. Bowen, M.D., Charles Bruce, M.D.

10:50 a.m.

Echos, CTs and MRIs – What’s the Difference? Aortic Imaging in Marfan Syndrome and Related Disorders
Heidi M. Connolly, M.D.

11:20 a.m.

Medical Treatment Options for Marfan Syndrome and Related Disorders: A Research Update
Hal Dietz, M.D.

11:50 a.m.

What are the Options for Aortic Surgery in Marfan Syndrome and Related Disorders? What are the Results?
Thoralf M. Sundt, III, M.D.

12:20 p.m.

Q&A Session

12:35 p.m.

Adjourn

SESSION III: Case – Based Discussions with Audience Response System

2:00 p.m.

Marfan & Pregnancy
Heidi M. Connolly, M.D., Charles Bruce, M.D., Carl H. Rose M.D.

3:00 p.m.

Break

3:15 p.m.

Challenges in the Postoperative Marfan Patient
Thoralf M. Sundt, III, M.D., Charles Bruce, M.D., Naser M. Ammash, M.D

4:15 p.m.

Break

4:30 p.m.

Are we Over-Diagnosing Marfan Syndrome?
Juan M. Bowen, M.D., Dusica Babovic- Vuksanovic, M.D., Frank Cetta, M.D.

5:30 p.m.

Adjourn

 

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